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Seeking information from people who have had meningioma biopsed

Posted by elisabeth007 @elisabeth007, May 30, 2024

i would greatly appreciating hearing from
those who had their meningioma biopsed. Thank you.

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elisabeth007 | @elisabeth007 | Jun 16, 2024
In reply to @mkoch "Jasonl1012: First of all, did a doctor tell you that you are a candidate for the..." + (show)
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Jasonl1012: First of all, did a doctor tell you that you are a candidate for the intranasal approach? From what I've read, that technique is only available if the meningioma is located in particular areas of the brain. Secondly, you would most likely find a neurosurgeon who does a lot of intranasal surgeries at the major medical centers throughout the country, Mayo, Stanford, UCSF, Penn., Cleveland Clinic, MD Anderson Clinic in Dallas, etc. If those locations are too far away from your comfort zone to travel to, I would think you would find such a specialist at most university associated hospitals. Your information that the surgery will statistically be more successful if the doctor has done several is valid and a fair question to ask during your consultation.

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Thanks Jason. i would like to be evaluated for the possibility of whether i’m a candidate for the intranasal approach. i have an upcoming appt at Mayo for an evaluation.

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jasonl1012 | @jasonl1012 | Jun 16, 2024
In reply to @mkoch "Jasonl1012: First of all, did a doctor tell you that you are a candidate for the..." + (show)
Profile picture for Maryann @mkoch

Jasonl1012: First of all, did a doctor tell you that you are a candidate for the intranasal approach? From what I've read, that technique is only available if the meningioma is located in particular areas of the brain. Secondly, you would most likely find a neurosurgeon who does a lot of intranasal surgeries at the major medical centers throughout the country, Mayo, Stanford, UCSF, Penn., Cleveland Clinic, MD Anderson Clinic in Dallas, etc. If those locations are too far away from your comfort zone to travel to, I would think you would find such a specialist at most university associated hospitals. Your information that the surgery will statistically be more successful if the doctor has done several is valid and a fair question to ask during your consultation.

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Yes, it's in the posterior sella next to the pituitary gland.

Thank you.

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jasonl1012 | @jasonl1012 | Jun 16, 2024
In reply to @elisabeth007 "its seems the top places eg Mayo offer the nasal option. UCLA also offers a non..." + (show)
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its seems the top places eg Mayo offer the nasal option. UCLA also offers a non invasive ablation option. i don’t know under what circumstances the nasal option can be done. i would prefer it too. What’s a “lift”? Wishing you all the best

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He said after craniotomy he would lift up my brain to get to it. I don't like the idea of someone putting pressure on the brain and lifting it. seems like that would cause damage and more swelling.

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elisabeth007 | @elisabeth007 | Jun 16, 2024
In reply to @jasonl1012 "I live in Erie, PA, USA." + (show)
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I live in Erie, PA, USA.

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i grew up in PA—near pgh

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suemarie3 | @suemarie3 | Jun 17, 2024
In reply to @elisabeth007 "seems very few places do nasal technique. Mayo does. i do not know if i’m a..." + (show)
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seems very few places do nasal technique. Mayo does. i do not know if i’m a candidate for it. it seems the general assumption is that most memingiomas are benign. after the last mri my neuro-optjamologist did not reiterate that meningioma’s are usually benign. He made me a neurosurgeon appt

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Mine presented as a 3.3x2.4
Brain neoplasm. (Probable meningioma)
Craniotomy on Feb 28 , 2023.
Turned out per the pathology it was a solitary fibrous tumor of CNS, grade 3.
Pretty rare.
Only symptoms I had was some pressure and dizziness that I attributed to sinus/allergies.
6 weeks daily radiation.
PET and MRI this week to check status.
Good luck to you

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