I feel like I am falling thru the cracks and I'm not being listened to. I have Peripheral Neuropathy from Chemo and radiation I had 10 years ago for colon cancer. A year after cancer diagnosis I was diagnosed with PPMS. I now have back issues I believe from the radiation at the Lumbar spine. The MRI read spinal stenosis and spondylolisthesis. I would love to know which of these is causing my balance problems and issues with hot weather. They all seem to have the same symptoms. Any ideas?
Yes, I’m barely surviving PN which I’ve had over 10 years. I took Gabapentin for years, with absolutely no relief; however, no relief from the incessant numbness either. I suppose I’m one of the “lucky” ones, since my only symptom was numbness. Yesterday was a particularly bad day. My numbness actually spread to the calf and foot of my other leg.
So, I suppose my whole purpose of this post is to solicit responses from other sufferers of PN who have ONLY numbness with no pain. This numbness definitely affects my mobility as well as balance, which wasn’t great to begin with. At my age (74), as I’m sure it is with others, stability is crucial.
I feel like I am falling thru the cracks and I'm not being listened to. I have Peripheral Neuropathy from Chemo and radiation I had 10 years ago for colon cancer. A year after cancer diagnosis I was diagnosed with PPMS. I now have back issues I believe from the radiation at the Lumbar spine. The MRI read spinal stenosis and spondylolisthesis. I would love to know which of these is causing my balance problems and issues with hot weather. They all seem to have the same symptoms. Any ideas?
@angielewis1959, I can relate to your balance issues along with not like hot weather much although it's better than my normal winter weather. I have degenerative disc condition along with old age, arthritis and neuropathy which I'm sure play a part in my balance issues. It might be a great question to ask your doctor but I think it might also be better to ask what can be done to help with the balance problem and heat sensitivity you may feel. Here's some information I found that sort of sums up what I think might help answer your question.
Yes, I’m barely surviving PN which I’ve had over 10 years. I took Gabapentin for years, with absolutely no relief; however, no relief from the incessant numbness either. I suppose I’m one of the “lucky” ones, since my only symptom was numbness. Yesterday was a particularly bad day. My numbness actually spread to the calf and foot of my other leg.
So, I suppose my whole purpose of this post is to solicit responses from other sufferers of PN who have ONLY numbness with no pain. This numbness definitely affects my mobility as well as balance, which wasn’t great to begin with. At my age (74), as I’m sure it is with others, stability is crucial.
@wascaly, I'm one of the numbness only neuropathy members also but I do have some tingling but no real pain. Balance is probably my number 1 issue and I try to keep moving and do a few of the balance exercises I was learned in several PT sessions. There are some discussions on neuropathy with numbness only that you might find helpful. Here's a search results link that lists the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=neuropathy:%20numbness
@wascaly, I'm one of the numbness only neuropathy members also but I do have some tingling but no real pain. Balance is probably my number 1 issue and I try to keep moving and do a few of the balance exercises I was learned in several PT sessions. There are some discussions on neuropathy with numbness only that you might find helpful. Here's a search results link that lists the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=neuropathy:%20numbness
Thanks for the link, John. I’ve spent buckets of 💰on so-called ‘natural” supplements, none of which have given me any relief.
Hopefully, I’ll find some help thru this link.
Thanks, again!
Karen (aka Wascaly)
Welcome @pwolford, I'm sorry to hear you have joined the neuropathy club. You are not alone and while there may not be a cure there are many things that might help provide relief from your symptoms. One of the best things you can do is learn as much as you can about neuropathy and what treatments are available that might provide some relief. We are our best advocates when it comes to our health. If you have not already seen the Foundation for Peripheral Neuropathy website, it is a treasure trove of information that you might want to bookmark for regular reading.
There are also many discussions on Connect in the Neuropathy Support Group that you might find helpful. Here's a link to the list of discussions - https://connect.mayoclinic.org/group/neuropathy/
Have you been diagnosed with a specific type of neuropathy or started a treatment?
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I feel like I am falling thru the cracks and I'm not being listened to. I have Peripheral Neuropathy from Chemo and radiation I had 10 years ago for colon cancer. A year after cancer diagnosis I was diagnosed with PPMS. I now have back issues I believe from the radiation at the Lumbar spine. The MRI read spinal stenosis and spondylolisthesis. I would love to know which of these is causing my balance problems and issues with hot weather. They all seem to have the same symptoms. Any ideas?
Has anyone tried reiki or myofascial release for neuropathy?
@menkcizmar, There is a discussion on Myofascial Release Therapy that you might want view to learn what others have shared - Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Yes, I’m barely surviving PN which I’ve had over 10 years. I took Gabapentin for years, with absolutely no relief; however, no relief from the incessant numbness either. I suppose I’m one of the “lucky” ones, since my only symptom was numbness. Yesterday was a particularly bad day. My numbness actually spread to the calf and foot of my other leg.
So, I suppose my whole purpose of this post is to solicit responses from other sufferers of PN who have ONLY numbness with no pain. This numbness definitely affects my mobility as well as balance, which wasn’t great to begin with. At my age (74), as I’m sure it is with others, stability is crucial.
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Hug
1 Reaction@angielewis1959, I can relate to your balance issues along with not like hot weather much although it's better than my normal winter weather. I have degenerative disc condition along with old age, arthritis and neuropathy which I'm sure play a part in my balance issues. It might be a great question to ask your doctor but I think it might also be better to ask what can be done to help with the balance problem and heat sensitivity you may feel. Here's some information I found that sort of sums up what I think might help answer your question.
-- Feeling off balance? A nerve condition may be to blame: https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/feeling-off-balance-a-nerve-condition-may-be-to-blame
Are you able to talk with your doctor to see if they may have some suggestions?
@wascaly, I'm one of the numbness only neuropathy members also but I do have some tingling but no real pain. Balance is probably my number 1 issue and I try to keep moving and do a few of the balance exercises I was learned in several PT sessions. There are some discussions on neuropathy with numbness only that you might find helpful. Here's a search results link that lists the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=neuropathy:%20numbness
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Helpful -
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1 ReactionThank you for the website -it certainly is very informative.
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1 ReactionThanks for the link, John. I’ve spent buckets of 💰on so-called ‘natural” supplements, none of which have given me any relief.
Hopefully, I’ll find some help thru this link.
Thanks, again!
Karen (aka Wascaly)
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Helpful -
Hug
2 ReactionsI have neuropathic my feet and sometimes my legs get numb but I'm not diabetic.
Welcome @pwolford, I'm sorry to hear you have joined the neuropathy club. You are not alone and while there may not be a cure there are many things that might help provide relief from your symptoms. One of the best things you can do is learn as much as you can about neuropathy and what treatments are available that might provide some relief. We are our best advocates when it comes to our health. If you have not already seen the Foundation for Peripheral Neuropathy website, it is a treasure trove of information that you might want to bookmark for regular reading.
-- Foundation for Peripheral Neuropathy - Living Well with PN: https://www.foundationforpn.org/living-well/
There are also many discussions on Connect in the Neuropathy Support Group that you might find helpful. Here's a link to the list of discussions - https://connect.mayoclinic.org/group/neuropathy/
Have you been diagnosed with a specific type of neuropathy or started a treatment?