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Stiff Person Syndrome: Want to connect with others

Brain & Nervous System | Last Active: Jun 9 10:56pm | Replies (210)
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@amandayounts14

I wouldn't have any expectations about staying home alone. I have 2 patients with it, and they are total care. One of them has to eat pureed food by his wife and cannot drink without aspirating. Also he cannot talk. His body is rigorous. If you can get on IVIG, sooner is better than later. Good luck

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Replies to "I wouldn't have any expectations about staying home alone. I have 2 patients with it, and..."
SusanEllen66 | @SusanEllen66 | Jun 9 10:56pm

@amandayounts14 you have 2 patients with SPS?
That’s amazing since it’s so rare!

So, someone who is elderly with Alzheimer’s, and SPS will need nursing home care. I am stunned…

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