Really concern, I received these results on patient knows best app.

Posted by stephjade86 @stephjade86, Jun 6 5:56pm

These results were from MRI on 5th May, then I went for another MRI of the brain 30th may, haven't seen results.
Just wondering if anyone knows the meaning of the results, I can't help but to be worried. I have epilepsy

Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.

stephjade86 | @stephjade86 | Jun 6 5:58pm

Worried

Chris Gautier OR Santosha | @santosha | Jun 7 3:53am

Hi @stephjade86
Those results are best analyzed by a doctor. From what you have shared with us, your right hippocampus is smaller, meaning perhaps that you have an sclerosis in this part of the brain. I myself have a sclerosis on my left hippocampus which is the cause of my temporal lobe epilepsy. I understand that the new MRI asked is one with more definition, correct? D please talk to a neurologist or even better to an epileptologist.
All the best!
Chris (@santosha)

stephjade86 | @stephjade86 | Jun 8 2:48am

What is sclerosis, how is treated

Chris Gautier OR Santosha | @santosha | Jun 8 4:42am

Hi @stephjade86
Sclerosis means hardening or scarring. Mesial temporal lobe epilepsy that is temporal lobe epilepsy with sclerosis should be first treated with AED (anti-seizure medication). What I have learned is that people with such kind of epilepsy have a higher percentage of changes of having refractory epilepsy, meaning that AED do not work well. I am one of those, controlling my seizures through Epidiolex (CBD from medical cannabis), trigger management, diet and yoga. Just by removing gluten from my diet, I could reduce my seizures by 60%. I am now trying an anti-inflammatory diet.
In the Epilepsy Foundation you can find more details. Here is the link of mesial temporal lobe: https://www.epilepsy.com/what-is-epilepsy/syndromes/temporal-lobe-epilepsy. In the Epilepsy Foundation you can also find more information regarding refractory epilepsy.
Surgery is much recommended in such cases, but in my opinion this should be the last resource after trying others, weighthing well the benefits versus benefits. Surgery was recommended once to me, but the harms I would have would be far more than the benefits. And as we know today, surgery does not guarantee cure from my seizures and medications need to be continued.
Chris (@santosha)

stephjade86 | @stephjade86 | Jun 8 8:10am

Thanks. Helped

Leonard | @jakedduck1 | Jun 8 6:02pm

@stephjade86
We aren't qualified to interpret your results.
But don't borrow trouble.
Are your seizures controlled? What medications are you taking?
Hang in there,
Jake

stephjade86 | @stephjade86 | Jun 9 11:57am

Keppra lacodime leimgeine.
Apologies for incorrect spelling. Uncontrollable

Chris Gautier OR Santosha | @santosha | Jun 10 2:33am

In reply to @jakedduck1 "@stephjade86 We aren't qualified to interpret your results. But don't borrow trouble. Are your seizures controlled?..." + (show)

I agree with @jakedduck1
See a doctor to have the correct interpretation of your MRI exams.
All the best!
Chris (@santosha)

Chris Gautier OR Santosha | @santosha | Jun 10 5:14am

Hi @stephjade86
I just watched an interview with Dr. Raj Attariwala, a specialist on MRI conducted by Dr. David Perlmutter, a respected neurologist and neuroscientist. Interesting to watch. Here is the link: https://www.youtube.com/watch?v=kibTHwNBRwA
Chris (@santosha)

fraidyfreund | @fraidyfreund | Jun 17 10:44pm

Anyone have experience with rapid weight gain 11 year old after starting Depakote? Does this settle at a certain point, or will he continue gaining?

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