Is anyone suffering from fibromyalgia and mental health conditions?

Posted by lijar @lijar, Nov 3, 2023

My 37 year old daughter was diagnosed with fibromyalgia at 19, mental health diagnosis of bipolar at about 16. On and off of many, many meds throughout the years. Currently in much pain, taking 300 mg Gabapentin 2xdaily, 25 mg doxipen, 3 mg Invega. These are doing nothing good, getting worse every day. Is anyone dealing with mental health issues and fibromyalgia and have you been successful in finding alleviation for both?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@covidstinks2023

God Bless you & your daughter. Fibromyalgia is hard to treat. I do not have mental health issues with mine, but, I know many people that do with Fibro. Pain & fatigue are wearing. Here is what helps my pain the most:
1) Stretches in the morning
2) Espsom salt bath soaks for sore muscles
3) Massages if she can stand it
4) Flexeril 5 mg (Prescription) muscle relaxant as needed
5) Voltaren Gel applied at least 4 times a day and Bed Buddy heat packs (Amazon)
6) Get off sugar & caffeine & junk food.
7) Try and keep moving as much as you can or she will get stiffer and hurt worse.
8) Try and get her into a pain clinic which could help with her pain and depression.
9) If she needs to nap, let her. Sleep is healing and restorative sleep helps greatly with Fibro. That is the #1 complaint of a fibro patient, "I don't sleep well" or "I am a light sleeper."
Praying for much relief.

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In August I'll be 76, and fibromyalgia has been with me for forty of those years. I have other much more serious health concerns as well (all with their own parameters of pain), but will comment for now just on the fibromyalgia.
I'm highly sensitive to so many prescription meds, so the only pain med that my primary said I can take when I determine that I "just gotta have something" is Aleve. I have GERD and other GI issues, so I take ONE Aleve, ONLY when it's absolutely necessary. Along with a heat pad rotated to body parts and engaging in mental imagery exercises, pain dissipates to a degree so that I can manage. Cannot and will not take prescribed drugs like gabapentin, Cymbalta, etc due to having had such terrifying experiences with any such (and related) meds. Definitely MOVEMENT helps, but due to other problems, I've had to curtail use of exercise equipment. I've been on flexeril for just about 4 decades. Thankfully, I am not in 24/7 fibromyalgia pain, but do have pain from other issues that fill in to keep me company and challenge my mental and emotional health. But the fibromyalgia in and of itself is a nasty devil indeed😈. A neurologist prescribed Voltaren years ago and I did try it but it didn't really help since I would have had to literally slather it on my entire body. When I learned of its connection to creating issues with the liver in particular, I got rid of it. The idea of applying it as you do (so liberally and so often) is concerning to me. Do your primary as well as your rheumatologist agree with how you incorporate Voltaren into your routine for dealing with pain? Just a thought, not a criticism.

Right now it's 3:14 AM by the time stamped on the upper right hand corner of my computer screen, and I've been awake since just after 2 AM. Pain from polymyalgia rheumatica is what woke me, and rather than stay in bed with the waves of pain, I came downstairs, walked around to stretch, and then decided to check my Mayo Connect. I just happen to have had my attention taken by the fibromyalgia question/discussion.

What else do I include when the nasty Pain Devil persists on challenging my days and nights? A hot shower, setting the shower head to pulsating massage. Feels so good, and does "release" the pain grip. Also stretching exercises, including in the evening (as an assist within bedtime routine). And "naps" when and as needed! The imposed fatigue and overwhelming ache makes it a must-do in order to help me cope. I listen to my body. I don't over do naps, though. I literally have to force myself to emerge from that "nap" (albeit gradually, not abruptly), get up and moving (although slowly at first), and then engage in must-do activities like laundry, meal prep, sweeping and dusting --- all chores that need attending to ANYWAY, but each helps me feel more control in my life instead of allowing pain to control me. I don't engage in all of them, just tackle what I can and what most needs attention. I play favorite CDs with music from my adolescence, which invigorates my spirit and can conjure happy memories. Sometimes classical music if preferred.

While pain has indeed been with me for years in many forms, my focus is in not letting it define me, but rather I acknowledge it in its various forms and have learned to work within its impositions .

Bottom line: We each have to be willing to explore ways to cope with what life has presented to us, and as unique beings, what works for one person may not necessarily be viable options for someone else.

Wishing you and others on this site peaceful days and nights, and spans of time without
pain.😊

REPLY

Hi, I am new to the site but not to pain. I found this support group in my e-mail this morning and I figured it might help. Just seeing others know how I feel, having same symptoms is validating to me. So.eone asked about mental health with fibro. Yes, I have bipolar disease. I am 68. I also have CVID so I live a pretty isolating life. Infusions every 3 weeks. Well that's a start. I have much more. What works for me is keeping positive. No, doesn't take the writhing pain away, but for me I live day by day. Find beauty in what I can. Am thankful for what I have. I still have horrible ti.es but having this attitude takes me thru. Well, all for now. Been up since 3 with pain. Fell down stairs 2 days ago. That didn't help. Moving forward. God bless and enjoy the day!

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@delia74

In August I'll be 76, and fibromyalgia has been with me for forty of those years. I have other much more serious health concerns as well (all with their own parameters of pain), but will comment for now just on the fibromyalgia.
I'm highly sensitive to so many prescription meds, so the only pain med that my primary said I can take when I determine that I "just gotta have something" is Aleve. I have GERD and other GI issues, so I take ONE Aleve, ONLY when it's absolutely necessary. Along with a heat pad rotated to body parts and engaging in mental imagery exercises, pain dissipates to a degree so that I can manage. Cannot and will not take prescribed drugs like gabapentin, Cymbalta, etc due to having had such terrifying experiences with any such (and related) meds. Definitely MOVEMENT helps, but due to other problems, I've had to curtail use of exercise equipment. I've been on flexeril for just about 4 decades. Thankfully, I am not in 24/7 fibromyalgia pain, but do have pain from other issues that fill in to keep me company and challenge my mental and emotional health. But the fibromyalgia in and of itself is a nasty devil indeed😈. A neurologist prescribed Voltaren years ago and I did try it but it didn't really help since I would have had to literally slather it on my entire body. When I learned of its connection to creating issues with the liver in particular, I got rid of it. The idea of applying it as you do (so liberally and so often) is concerning to me. Do your primary as well as your rheumatologist agree with how you incorporate Voltaren into your routine for dealing with pain? Just a thought, not a criticism.

Right now it's 3:14 AM by the time stamped on the upper right hand corner of my computer screen, and I've been awake since just after 2 AM. Pain from polymyalgia rheumatica is what woke me, and rather than stay in bed with the waves of pain, I came downstairs, walked around to stretch, and then decided to check my Mayo Connect. I just happen to have had my attention taken by the fibromyalgia question/discussion.

What else do I include when the nasty Pain Devil persists on challenging my days and nights? A hot shower, setting the shower head to pulsating massage. Feels so good, and does "release" the pain grip. Also stretching exercises, including in the evening (as an assist within bedtime routine). And "naps" when and as needed! The imposed fatigue and overwhelming ache makes it a must-do in order to help me cope. I listen to my body. I don't over do naps, though. I literally have to force myself to emerge from that "nap" (albeit gradually, not abruptly), get up and moving (although slowly at first), and then engage in must-do activities like laundry, meal prep, sweeping and dusting --- all chores that need attending to ANYWAY, but each helps me feel more control in my life instead of allowing pain to control me. I don't engage in all of them, just tackle what I can and what most needs attention. I play favorite CDs with music from my adolescence, which invigorates my spirit and can conjure happy memories. Sometimes classical music if preferred.

While pain has indeed been with me for years in many forms, my focus is in not letting it define me, but rather I acknowledge it in its various forms and have learned to work within its impositions .

Bottom line: We each have to be willing to explore ways to cope with what life has presented to us, and as unique beings, what works for one person may not necessarily be viable options for someone else.

Wishing you and others on this site peaceful days and nights, and spans of time without
pain.😊

Jump to this post

What a sweetheart you are. Thank you for your concern. Very little absorption from Voltaren Gel to the liver. I don't put it on 4 times a day every day. I understand your concern and I am grateful for them.

Yes, we do have to explore ways to cope with life and distract our minds from the pain. Laughter, writing cards, phone calls, fixing a meal for someone in worse shape than me, sitting in the sun and praying, praying for others, studying my Bible, hot epsom salt tub soaks....gets the pain down, but, when I get out, it comes right back.

You have a lot going on and I am so sorry. More than I. Praying for you right now and grateful for your many years of insight into these painful malady.

REPLY
@delia74

In August I'll be 76, and fibromyalgia has been with me for forty of those years. I have other much more serious health concerns as well (all with their own parameters of pain), but will comment for now just on the fibromyalgia.
I'm highly sensitive to so many prescription meds, so the only pain med that my primary said I can take when I determine that I "just gotta have something" is Aleve. I have GERD and other GI issues, so I take ONE Aleve, ONLY when it's absolutely necessary. Along with a heat pad rotated to body parts and engaging in mental imagery exercises, pain dissipates to a degree so that I can manage. Cannot and will not take prescribed drugs like gabapentin, Cymbalta, etc due to having had such terrifying experiences with any such (and related) meds. Definitely MOVEMENT helps, but due to other problems, I've had to curtail use of exercise equipment. I've been on flexeril for just about 4 decades. Thankfully, I am not in 24/7 fibromyalgia pain, but do have pain from other issues that fill in to keep me company and challenge my mental and emotional health. But the fibromyalgia in and of itself is a nasty devil indeed😈. A neurologist prescribed Voltaren years ago and I did try it but it didn't really help since I would have had to literally slather it on my entire body. When I learned of its connection to creating issues with the liver in particular, I got rid of it. The idea of applying it as you do (so liberally and so often) is concerning to me. Do your primary as well as your rheumatologist agree with how you incorporate Voltaren into your routine for dealing with pain? Just a thought, not a criticism.

Right now it's 3:14 AM by the time stamped on the upper right hand corner of my computer screen, and I've been awake since just after 2 AM. Pain from polymyalgia rheumatica is what woke me, and rather than stay in bed with the waves of pain, I came downstairs, walked around to stretch, and then decided to check my Mayo Connect. I just happen to have had my attention taken by the fibromyalgia question/discussion.

What else do I include when the nasty Pain Devil persists on challenging my days and nights? A hot shower, setting the shower head to pulsating massage. Feels so good, and does "release" the pain grip. Also stretching exercises, including in the evening (as an assist within bedtime routine). And "naps" when and as needed! The imposed fatigue and overwhelming ache makes it a must-do in order to help me cope. I listen to my body. I don't over do naps, though. I literally have to force myself to emerge from that "nap" (albeit gradually, not abruptly), get up and moving (although slowly at first), and then engage in must-do activities like laundry, meal prep, sweeping and dusting --- all chores that need attending to ANYWAY, but each helps me feel more control in my life instead of allowing pain to control me. I don't engage in all of them, just tackle what I can and what most needs attention. I play favorite CDs with music from my adolescence, which invigorates my spirit and can conjure happy memories. Sometimes classical music if preferred.

While pain has indeed been with me for years in many forms, my focus is in not letting it define me, but rather I acknowledge it in its various forms and have learned to work within its impositions .

Bottom line: We each have to be willing to explore ways to cope with what life has presented to us, and as unique beings, what works for one person may not necessarily be viable options for someone else.

Wishing you and others on this site peaceful days and nights, and spans of time without
pain.😊

Jump to this post

I find that using a tens machine helps tremendously with the fibermyalgia pain. I also have a sensitivity to drugs and especially NSAIDS so my doctor presciped a goo called 200 diclofenac 10% in plo gel and us stronger than Voltaren, it is a topical Nsaid and doesn't cause me to bleed internally like the oral Nsaids.I have more
health issues and everyday is a battle against depression.
I also use a magic bag for heat. Ice unfortunately brings on an attack of the fibermyalgia.
God bless you for being such a fighter, it gives hope to us all battling this horrible disease.

REPLY
@delia74

In August I'll be 76, and fibromyalgia has been with me for forty of those years. I have other much more serious health concerns as well (all with their own parameters of pain), but will comment for now just on the fibromyalgia.
I'm highly sensitive to so many prescription meds, so the only pain med that my primary said I can take when I determine that I "just gotta have something" is Aleve. I have GERD and other GI issues, so I take ONE Aleve, ONLY when it's absolutely necessary. Along with a heat pad rotated to body parts and engaging in mental imagery exercises, pain dissipates to a degree so that I can manage. Cannot and will not take prescribed drugs like gabapentin, Cymbalta, etc due to having had such terrifying experiences with any such (and related) meds. Definitely MOVEMENT helps, but due to other problems, I've had to curtail use of exercise equipment. I've been on flexeril for just about 4 decades. Thankfully, I am not in 24/7 fibromyalgia pain, but do have pain from other issues that fill in to keep me company and challenge my mental and emotional health. But the fibromyalgia in and of itself is a nasty devil indeed😈. A neurologist prescribed Voltaren years ago and I did try it but it didn't really help since I would have had to literally slather it on my entire body. When I learned of its connection to creating issues with the liver in particular, I got rid of it. The idea of applying it as you do (so liberally and so often) is concerning to me. Do your primary as well as your rheumatologist agree with how you incorporate Voltaren into your routine for dealing with pain? Just a thought, not a criticism.

Right now it's 3:14 AM by the time stamped on the upper right hand corner of my computer screen, and I've been awake since just after 2 AM. Pain from polymyalgia rheumatica is what woke me, and rather than stay in bed with the waves of pain, I came downstairs, walked around to stretch, and then decided to check my Mayo Connect. I just happen to have had my attention taken by the fibromyalgia question/discussion.

What else do I include when the nasty Pain Devil persists on challenging my days and nights? A hot shower, setting the shower head to pulsating massage. Feels so good, and does "release" the pain grip. Also stretching exercises, including in the evening (as an assist within bedtime routine). And "naps" when and as needed! The imposed fatigue and overwhelming ache makes it a must-do in order to help me cope. I listen to my body. I don't over do naps, though. I literally have to force myself to emerge from that "nap" (albeit gradually, not abruptly), get up and moving (although slowly at first), and then engage in must-do activities like laundry, meal prep, sweeping and dusting --- all chores that need attending to ANYWAY, but each helps me feel more control in my life instead of allowing pain to control me. I don't engage in all of them, just tackle what I can and what most needs attention. I play favorite CDs with music from my adolescence, which invigorates my spirit and can conjure happy memories. Sometimes classical music if preferred.

While pain has indeed been with me for years in many forms, my focus is in not letting it define me, but rather I acknowledge it in its various forms and have learned to work within its impositions .

Bottom line: We each have to be willing to explore ways to cope with what life has presented to us, and as unique beings, what works for one person may not necessarily be viable options for someone else.

Wishing you and others on this site peaceful days and nights, and spans of time without
pain.😊

Jump to this post

What does of Flexeril do you take and do you take it every day? I take 5mg rarely, only on nights when I need it due to pain. I read it shouldn't be taken long-term so am afraid to take it every day. I also read if you do take it long-term, it can quit working. Does it help with your pain during the day? Thanks.

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@ripley

What does of Flexeril do you take and do you take it every day? I take 5mg rarely, only on nights when I need it due to pain. I read it shouldn't be taken long-term so am afraid to take it every day. I also read if you do take it long-term, it can quit working. Does it help with your pain during the day? Thanks.

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10 mg dose nightly. My rheumatologist and I had a conversation about precisely what you state regarding that it can quit working. But I have no alternatives. Cannot and will not take Humira, Cymbalta, or any other such as those due to serious sensitivity to majority of drugs. I'm talking scary hallucinations, night terrors and nightmares, as well as a host of other horrid symptoms. Initially had been prescribed amitriptyline also, and that drug I had to taper the doses until I was finally able to just eliminate it. It had contributed very unfavorable side effects, especially since it is actually prescribed as an antidepressant and I was on another antidepressant that wasn't addressing my depression (I got help for tapering and getting off that also!) and the ami just exacerbated what the Effexor XR was doing to me (and yes I finally got guidance and eliminated that drug also!). But the cyclo helps with muscle pain as well as makes me sleepy so I take 10 mg only at night, never during the day or I'd spend my time sleeping and then being angry at having had my day wasted! Despite the cyclo, I still experience periods of pain, and since I also have polymalgia rheumatica, that disorder knocks the fibromyalgia right out of the park. The PMR pain is totally different and even more intense than the fibromyalgia. My life has been and continues to be complicated. For me, a good day is measured by having an overall Pain Level score of 5 (pretty bearable in my book) or at times even less.

To further address your point: Yes, within medical journals, etc., that I researched, I did learn that most doctors prescribe the cyclo for a period of weeks and then stop for a few months, to then start the cycle again. I've never even asked about that nor would consider it. It's advisable to keep in mind that cyclobenzeprine IS a muscle relaxant so great caution must be taken to not take more than what is prescribed. As one doctor told me, it can indeed affect the heart since it IS a muscle!

I hope you can find your ways of dealing with the pain(s) of fibromyalgia. When I was first diagnosed, I told the doctor "I can't accept that diagnosis since it does not have a cure, and I have three young children to raise." So for a few years I did not seek medical help and took no meds, just ached horribly, had such non restorative sleep, and lived daily with ever-present pain. I finally faced the facts and accepted guidance and medication. I'll continue taking the cyclo in addition to a few priority prescribed drugs for my other health issues.

I wishy you well.💖

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I can't take any of the usual meds, gabapentin, or other that are for depression because of the terriible side effects. I am stuck with pain meds.

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@delia74

10 mg dose nightly. My rheumatologist and I had a conversation about precisely what you state regarding that it can quit working. But I have no alternatives. Cannot and will not take Humira, Cymbalta, or any other such as those due to serious sensitivity to majority of drugs. I'm talking scary hallucinations, night terrors and nightmares, as well as a host of other horrid symptoms. Initially had been prescribed amitriptyline also, and that drug I had to taper the doses until I was finally able to just eliminate it. It had contributed very unfavorable side effects, especially since it is actually prescribed as an antidepressant and I was on another antidepressant that wasn't addressing my depression (I got help for tapering and getting off that also!) and the ami just exacerbated what the Effexor XR was doing to me (and yes I finally got guidance and eliminated that drug also!). But the cyclo helps with muscle pain as well as makes me sleepy so I take 10 mg only at night, never during the day or I'd spend my time sleeping and then being angry at having had my day wasted! Despite the cyclo, I still experience periods of pain, and since I also have polymalgia rheumatica, that disorder knocks the fibromyalgia right out of the park. The PMR pain is totally different and even more intense than the fibromyalgia. My life has been and continues to be complicated. For me, a good day is measured by having an overall Pain Level score of 5 (pretty bearable in my book) or at times even less.

To further address your point: Yes, within medical journals, etc., that I researched, I did learn that most doctors prescribe the cyclo for a period of weeks and then stop for a few months, to then start the cycle again. I've never even asked about that nor would consider it. It's advisable to keep in mind that cyclobenzeprine IS a muscle relaxant so great caution must be taken to not take more than what is prescribed. As one doctor told me, it can indeed affect the heart since it IS a muscle!

I hope you can find your ways of dealing with the pain(s) of fibromyalgia. When I was first diagnosed, I told the doctor "I can't accept that diagnosis since it does not have a cure, and I have three young children to raise." So for a few years I did not seek medical help and took no meds, just ached horribly, had such non restorative sleep, and lived daily with ever-present pain. I finally faced the facts and accepted guidance and medication. I'll continue taking the cyclo in addition to a few priority prescribed drugs for my other health issues.

I wishy you well.💖

Jump to this post

Is the Flexeril the only med you take for fibro pain? Thank you.

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@lijar you’re a wonderful mom!
I have had Fibromyalgia for about 40 years, and I was diagnosed with general anxiety disorder and Bipolar disorder 18 years ago. I am 75.

I have tried to take the usual medications for fibromyalgia and they all turned me into a zombie. So, once in a while, I take Tylenol. I would much rather use topical creams and patches. Or, nothing at all.

The only medications I take for my mental issues are Zoloft, and Lamictal.

I also have several neurological disorders. The Neurologist is constantly trying to get me to take medications that don’t heal, and are useless.

Please don’t let the doctors put her on lots of drugs. They will make her worse!

You love her very much.
Susan

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@ripley

Is the Flexeril the only med you take for fibro pain? Thank you.

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Hi Ripley! I just saw this today. Have not been on the site a frequently as I used to. Have had many major hurdles and decisions that absorbed a great deal of my time. AND disturbing revelations about medical issues, so have had a lot on my mind and soul...

Flexeril is the the only med specifically for the fibromyalgia. I've done research that supports my decision to not take certain meds often considered for this nasty pain syndrome. Specifically amitryptiline, which I had been on in conjunction with flexeril, decades ago, but had to stop using due to intolerable side effects. Now that I have central and peripheral nervous system problems, which include demyelination, and stage 4 glaucoma in left eye (lesser degree in right eye), flexeril is contraindicated. I'm having a conversation with my extensive medical team about that, most especially the various neurologists and rheumatologists. If I have to choose between more rapidly fading vision (leading to NO vision) and body pain, I'd rather be able to see.

As with you, I can't take gabapentin. Horrid effects. And yet so many doctors within various disciplines prescribe it. No thanks.

As already posted, Aleve helps, taken only when absolutely needed. And heat pads.
Resting also, although I do find that making myself get up and MOVE actually can help. Besides, I'm such an A+++ personality type that I become antsy and anxious just thinking about what most needs attention. Make a priority list. DOES help.

Hope you've had a less painful summer, and that the coming months don't have fibromyalgia pain etched in the calendar! 🍁🍂

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