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Liver transplant side affects in young adults
Transplants | Last Active: Jun 7 1:40pm | Replies (19)Comment receiving replies
Yes, saw a Neurologist and they did a series of blood tests and a electrical test on my feet. They are numb. I used to have hot and cold feelings. Most of these have passed. Now it's just pain. I take pregabalin for it but it dose not seem to help. I had one goofy doctor from 2018 until 2 years ago. He left the hospital system I belong to so I found #2 in 2022. He did some more blood work that the previous doc did. Still no definitive answer as to why I have this issue. I ran into an former Transplant Coordinator and told her. She said to me, ya this can happen. So far all I know is it's possible the Tacrolimus immune surpressant I have taken since 2000 with my 1st transplant is a probable cause. It's makes me mad at times. I ask my current Transplant doctor if we can reduce the immune surpressants and he said it below the normal range already.
Replies to "Yes, saw a Neurologist and they did a series of blood tests and a electrical test..."
I was transplanted on 2017 and shortly thereafter started experiencing numbness and tingling side effects and assumed I they would go away like other issues.
2023 I still have the experience and try n stay active irregardless of the sensations. I found exercise helps to curb it but doesn’t cure it.
My Hepatologist said “ not much of an option so I just look at it as better than not taking the meds.
I researched more and learned it is called Neuropathy and a lot of nontransplanted folk have it and can be caused by diabetes. I see ads on TV for breakthroughs in treatment but am a bit hesitant on their science and if it really worked I doubt if they would need those ads. Hopefully they will find a correlation or new med to help in the future until then we do what we can to make it better right ?
Hang on there
Prayers and Blessings Ed
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Thaniks for your response, Bob. As for myself. I have not had the numbness and tingling. In fact, I was unaware of this potential issue, and don't recall seeing it mentioned in another discussion. I guess I should have said that I was asking for a friend! ( @jackie421blfdgurl )
Bob, I want to introduce you to @jackie421blfdgurl and @edwardlwallace who mentioned tingling and numbness in the support discussion: Liver transplant - Let's support each other
Here is the link
https://connect.mayoclinic.org/discussion/liver-support-group/?pg=158#comment-1081624
Jackie, Ed - I hope you will read Bob's experience.