Anyone take a PPI & your Kidney function declined? Worried!

Hi Ginger. So nice to see a comment from you. Its 4:30 in the morning and I am awake because Mt feet are having neuropathy and aching and my hands. This is why I an so scared about my kidneys failing. I wouldn't be so scared if this wasn't happening for a month and my doctor doesn't seem to care. Although I talked to tge pharmacist he say this neuropathy is not from my kidneys. For a month now I am watching the sun come up because of pain. I feel at times just go to the ER and ask for help

FROM NIH:

Logo of cureus
Cureus. 2023 Dec; 15(12): e49883.
Published online 2023 Dec 3. doi: 10.7759/cureus.49883
PMCID: PMC10762285
PMID: 38174181
Impact of Proton Pump Inhibitors on Kidney Function and Chronic Kidney Disease Progression: A Systematic Review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10762285/

****CORRECTION: The Pharmacist DID NOT TELL ME THAT THE NEPHROPATHY IS NOT FROM MY KIDNEYS. I was typing on my cell phone and that was a typo.He said I needed to talk to my doctor about the neuropathy.Typing at 4:30 A.M. with blurry eyes.

@sallylynn try to refrain from typing at 4:30 am! (It looks like you are mixing up nephropathy and neuropathy; it doesn’t help when the words sound similar and have similar spelling!)

Thank you for the advice. My cell phone does auto correct as well and it has put the wrong word in. Have a nice day.

Hi. I received a phone call from my new Doctor's nurse today tolet me know that she put the order in for the Cystatin C blood work. I will gat that done tomorrow. As well, she has put in a referral to the Kidney dept. I should receive a call in a week. My former doctor who refused to order a BMP for me I have put in a formal complaint to the Administration. The nurse who called me did disclose there will be a meeting. My Creatinine and eGFR did NOT drop from 1.08 to 1.23 and eGFR from 61 to 49 overnight. All for I know I my eGFR has been hoveting in the 40's for months!!! She denied me a simple but critical test for months. IF she would have ordered the BMP ,I would have had precious time to get off the meds and seen a specialist. This is like a bad dream.

Hi Ginger. I got a phone call from the Kidney clinic and I am scheduled for a November appointment. I am also on the waiting list. Tomorrow A.M. I am getting the Cystatin C blood work. My New PCP put the order in and of course put the referral in for a Kidney specialist.

@sallylynn That is a step forward, so good for you! Being on the waiting list means you may be able to get in earlier than November, also a good thing! Take whatever earlier appointment they can muster for you, if it is possible. Remember that the Cystatin C test will offer a different value for eGFR than the regular one. It sounds like your new PCP may be a better fit for you.
Ginger

Hello Ginger. May I ask please if you ever had the Cystatin C test? I have been reading about it. I'd be a liar if I said I wasn't scared. IF I didn't have this intermittent achy/ neuropathy in my feet and hands I probably wouldn't be as scared. I feel a lot anger and fear right now Ginger. I am angry because all for I know my eGFR has been hovering in the 40's for months and that is why I possibly have symptoms now! I was denied a blood test to check how my kidneys were functioning! Actually ENT sent a referral to her for a BMP and no response & then my gastrologist as well, which was ignored! I could have gotten off my meds after a couple months being on them! Yes, I am livid. Very livid! And yes, the Administration at my Clinic received a complaint from me. I want **** reprimanded. ~ My new PCP right off the bat was pro active, however, Administration is now involved in my situation so they may have had a say about the nephrologist and that is why I had a swift referral, but I pray my new PCP will be on top of the game. I am just...devastated. 🙁

****UPDATES
I had blood work on 05/22. Tests done: Cystatin C, BMP Magnesium.
Mixed results.
The Cystatin C: 1.3= ELEVATED, eGFR 56.
BMP: Creatinine: LOWER 1.09. [Was 1.23 05/22] eGFR 60 [Was 49 on 05/22]
GLUCOSE: 66 Normal range 70-99.
* I did find out having a high Cystatin does cause NEUROPATHY. Now I know why my feet and hands have it.
* Also PPI's cause the Cystatin C to rise because the Kidneys are suffering from PPI use.
The Kidney Clinic should be calling me today to go over my results and what's next.
The Nurse told me yesterday via telephone conversation that I have had CKD for a year.
As well I asked a blunt question yesterday and understood if they didn't want to answer. I asked have you ever had patients who got CKD or renal failure from PPI's? The answer was yes.
Because I have CKD, I never should have been taking a PPI. I have L.A. Grade erosive esophagitis diagnosed by endoscopy.
PCP's need to have "Eagle Eyes" on any patient who is taking Antacids and RX'd PPI's. I think BEFORE any patient starts a PPI or H2 Blocker should have a Basic Metabolic Panel done before they start treatment. PPI's should review their patients prior blood labs before RXing PPI's before just willy nilly prescribing them.
The pieces of the puzzle are coming together for me because I was adamant to get a BMP blood test to gauge where I was sitting with my Kidney function I am so angry my former PCP refusing for some God forsaken reason putting in a BMP order for me. What skin off her back would it have been to spend 10 seconds putting in a lab order? I asked for almost 2 months. It took a different doctor to put the order in. So, thank you to the Dr. who did. Thank you so much.
It is sad state of affairs now in the Medical arena of the detachment form Medical staff and the Patient. It's sad a Patient has to become a "Problem" or a "Complainer" because their Doctors are inept, or Gaslighting their patients or have strong narcissistic traits. Its sad a Patient has to fight tooth and nail to get "Proper" Medical treatment. If a Medical Professional is readiong this, take heed of what I said We are your Customers. We pay you. We deserve the treatment that is stated inThe Hippocratic Oath.