Me too. He’s a top ENT who specializes in taste disorders. Lol. But, I feel I need to push the envelope and explore all potential explanations. I’m dealing with a very stressful taste condition and chronic constipation. So….is there a connection? Idk, but I feel my job is to be a self advocate.
Me too. He’s a top ENT who specializes in taste disorders. Lol. But, I feel I need to push the envelope and explore all potential explanations. I’m dealing with a very stressful taste condition and chronic constipation. So….is there a connection? Idk, but I feel my job is to be a self advocate.
I'm dealing with similar issues. It's obvious I have cervical muscle asymmetry when I frown. As I also have chronic eustachian tube dysfunction, I believe the spasm extents to my up to veli palatini and down through my lungs to my ribs. Overall, my sinuses, neck, esophagus, saliva glands, lymph nodes l, stomach, etc all feel dysfunctional and like the plumbing/drainage is thrown off, resulting in halitosis, dry mouth, gastroparesis, etc.
I'm dealing with similar issues. It's obvious I have cervical muscle asymmetry when I frown. As I also have chronic eustachian tube dysfunction, I believe the spasm extents to my up to veli palatini and down through my lungs to my ribs. Overall, my sinuses, neck, esophagus, saliva glands, lymph nodes l, stomach, etc all feel dysfunctional and like the plumbing/drainage is thrown off, resulting in halitosis, dry mouth, gastroparesis, etc.
I just got an MRI of my upper chest (sternoclavicular joint) ordered. They said it's not a typical MRI which is why I have to wait until August. I'll be evaluated for hypermobile EDS by an orthopedist. I want multiple stabilization/reparative surgeries, and what do I need? Not sure. The eustachian tube dysfunction /snapping hyoid can be affected by swallowing. The hypermobile hyoid and posterior SCJ subluxation cause airway irritation, making me react to things such as smoke or fragrance more easily.
I can’t believe how lucky I got. I called for a neurologist appointment (large major teaching hospital) expecting it to be 6 months out and got one tomorrow! I’m staying positive. Hopefully, this will lead to some answers. My ENT follow up is later this month.
I can’t believe how lucky I got. I called for a neurologist appointment (large major teaching hospital) expecting it to be 6 months out and got one tomorrow! I’m staying positive. Hopefully, this will lead to some answers. My ENT follow up is later this month.
Please let us know if you get some answers.
My taste issues and dry mouth have improved quite a bit, but still have Eustachian tube dysfunction and chronic constipation.
Terrible vision as well which all doctors say is not related.
Who knows??
Please let us know if you get some answers.
My taste issues and dry mouth have improved quite a bit, but still have Eustachian tube dysfunction and chronic constipation.
Terrible vision as well which all doctors say is not related.
Who knows??
I also share some of the issues as you! Have you seen a Rheumatologist? I have an appointment to be evaluated for Sjogrens. Idk……I also have dry eye.
UPDATE. I’m glad I got in to see the neurologist, but devastated by the news. He’s pretty sure a Vitamin B12 deficiency caused my hand and foot issues. I got my levels up last year, but apparently that wasn’t enough. Increasing my dosage……so my foot and hand issues are permanent and nothing can improve them. ………….. Having trouble digesting that. Very sad. So, my taste issue that seemed so huge is now not so big. The big question is whether the taste problem is also caused by my Vitamin B12 deficiency…..the doctor didn’t know. And, did it cause my chronic constipation? He didn’t know.
I am glad I got in and discovered what is going on. I need a few days to regroup and figure out my next steps.
Oh, one bright spot. One of the staff members lost their sense of smell for a year, then it returned to normal. It happened right after they got covid.
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I too read the article and it makes sense but I went to an ENT and he said everything looked ok.
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1 ReactionMe too. He’s a top ENT who specializes in taste disorders. Lol. But, I feel I need to push the envelope and explore all potential explanations. I’m dealing with a very stressful taste condition and chronic constipation. So….is there a connection? Idk, but I feel my job is to be a self advocate.
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2 Reactions@celia16 I’m glad to hear that you are planning on self-advocating. It can be tough but rewarding! What do you think your next step will be?
I have a follow up appointment with my ENT. But, I’m going to also seek an appointment with another neurologist.
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1 ReactionI'm dealing with similar issues. It's obvious I have cervical muscle asymmetry when I frown. As I also have chronic eustachian tube dysfunction, I believe the spasm extents to my up to veli palatini and down through my lungs to my ribs. Overall, my sinuses, neck, esophagus, saliva glands, lymph nodes l, stomach, etc all feel dysfunctional and like the plumbing/drainage is thrown off, resulting in halitosis, dry mouth, gastroparesis, etc.
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1 Reaction@adam717 What are the doctors able to do to help you with all these dysfunctions? How do they interfere with eating and breathing?
I just got an MRI of my upper chest (sternoclavicular joint) ordered. They said it's not a typical MRI which is why I have to wait until August. I'll be evaluated for hypermobile EDS by an orthopedist. I want multiple stabilization/reparative surgeries, and what do I need? Not sure. The eustachian tube dysfunction /snapping hyoid can be affected by swallowing. The hypermobile hyoid and posterior SCJ subluxation cause airway irritation, making me react to things such as smoke or fragrance more easily.
-
Like -
Helpful -
Hug
1 ReactionI can’t believe how lucky I got. I called for a neurologist appointment (large major teaching hospital) expecting it to be 6 months out and got one tomorrow! I’m staying positive. Hopefully, this will lead to some answers. My ENT follow up is later this month.
-
Like -
Helpful -
Hug
1 ReactionPlease let us know if you get some answers.
My taste issues and dry mouth have improved quite a bit, but still have Eustachian tube dysfunction and chronic constipation.
Terrible vision as well which all doctors say is not related.
Who knows??
-
Like -
Helpful -
Hug
2 ReactionsI also share some of the issues as you! Have you seen a Rheumatologist? I have an appointment to be evaluated for Sjogrens. Idk……I also have dry eye.
UPDATE. I’m glad I got in to see the neurologist, but devastated by the news. He’s pretty sure a Vitamin B12 deficiency caused my hand and foot issues. I got my levels up last year, but apparently that wasn’t enough. Increasing my dosage……so my foot and hand issues are permanent and nothing can improve them. ………….. Having trouble digesting that. Very sad. So, my taste issue that seemed so huge is now not so big. The big question is whether the taste problem is also caused by my Vitamin B12 deficiency…..the doctor didn’t know. And, did it cause my chronic constipation? He didn’t know.
I am glad I got in and discovered what is going on. I need a few days to regroup and figure out my next steps.
Oh, one bright spot. One of the staff members lost their sense of smell for a year, then it returned to normal. It happened right after they got covid.
-
Like -
Helpful -
Hug
1 Reaction