Gamma knife for meningiomas

Posted by lisakuehl @lisakuehl, Aug 9, 2018

Greetings - do any followers of this group have any experience with the use of the "gamma knife" when arresting the growth of benign meningiomas? Thanks!

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Hi @lisakuehl
There are several discussions about meningiomas in the Brain Tumor group that you may be interested in reading, specifically this one started by @nancye3 when she was investigating gamma knife for her sister and Elaine and others provided their insights.
- Meningiomas. Gamma knife or Cyber Knife. Which is more effective ? https://connect.mayoclinic.org/discussion/meningeomas-gamma-knife-or-cyber-knife-which-is-more-effective/

Keep asking questions. Many are here to share their experiences.

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I had Gamma radiation on Jan 11 and had weird hazy/double vision this am. It was vertical and horizontal. I have had vertical double vision at night but this didn't resolve until I got up. Usually, it resolves after a few seconds. Have any of you had this? I already had my follow up with the radiologist but didn't have this at that time. Thanks

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@jmb73

I had Gamma radiation on Jan 11 and had weird hazy/double vision this am. It was vertical and horizontal. I have had vertical double vision at night but this didn't resolve until I got up. Usually, it resolves after a few seconds. Have any of you had this? I already had my follow up with the radiologist but didn't have this at that time. Thanks

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Hi, @jmb73 - I moved your post here to this discussion, "Gamma Knife for Meningiomas," so you could discuss with others talking about this subject. However, I realize that another similar thread you started would be perfect for your update here on what happened with your vision from the gamma radiation, if you would post it in that discussion https://connect.mayoclinic.org/discussion/gamma-knife-radio-surgery-for-meningioma/.

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So there’s either the mask or the head frame for gamma knife?

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Has anyone had gamma knife treatment (and radiation) for a meningoma?

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neurosurgeon told me there’s a “head frame that’s screwed on

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@elisabeth007

Has anyone had gamma knife treatment (and radiation) for a meningoma?

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No but I had a patient get proton rx with good results.

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@kanaazpereira

Welcome, @lisakuehl,

I'm so glad you've joined Connect, and that you've "connected" with @nancye3 and @mrser52. May I ask if you want to find more information about gamma knife and meningiomas for yourself or a loved one?

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Yes, please. And who in Jacksonville is best qualified to evaluate the risk of a growing meningoma?

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If you want to drive to Orlando, Dr. Fields is the best. He lectures on Gamma Knife Ray Surgery. He did mine in 2019 and I had no problems. They do screw the mask into your head but only the lidocaine stings. I can talk you through it if you would like me to.

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@jmb73

If you want to drive to Orlando, Dr. Fields is the best. He lectures on Gamma Knife Ray Surgery. He did mine in 2019 and I had no problems. They do screw the mask into your head but only the lidocaine stings. I can talk you through it if you would like me to.

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i am unable to drive because of visual impairments. i would like to see someone at mayo for reasons including the ability to access with my south florida doctors and access my scans and medical notes on the epic system. However, i am delighted for you that you found an excellent dr

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