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Starting Esbreit (Pirfenidone)
Lung Health | Last Active: Jun 18 2:42am | Replies (7)Comment receiving replies
Hubbs has had some congestion the last few days, as well as the continued abdominal "tightness" (which may be partly due to kyphoplasty surgery on his spine 6 months ago). Today, when he complained of feeling "weak" (one of the side effects of Pirfenidone), I suggested that he skip one of his 3 daily pills today, but he didn't want to do that. He continues to go to his Pulmonary Rehab twice a week, and has another month to go. Uses 6L oxygen with a tank they provide there while walking around track. Increased oxygen from his concentrator to 4L at night, and his daytime portable oxygen concentrator from 2 to 4L. It only goes to 5L What next?? Should we plan ahead and get a POC with a larger capacity of 6L and one with a larger battery (current Rhythm Health only lasts 2 hours on 4L). Thanks for any and all suggestions!
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Am just starting oxygen now so have done some research:
1) Continuous flow vs. pulse flow concentrators
At Mayo they only measure in continuous flow (Liters/min) which is considered the gold standard...
Pulse dose (PD) oxygen delivery is based on breathing and inhaling, which customizes your oxygen delivery to your breath rate. Continuous flow (CF), on the other hand, delivers oxygen at a constant adjustable rate, indiscriminate of the user's breathing, measured in liters per minute.
2) Lighter weight portable concentrators like Inogen are pulse dose. But they are not able to meet higher oxygen needs which would require continuous flow portable. These exist but they weigh more ....10lbs example.
3) Nighttime at home concentrator will be continuous flow
4) One should test the portable oxygen concentrator with one's oximeter during activity to see if it keeps one in the "safe zone"
Talk to you doctor about it all.