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Myxofibrosarcoma: What treatments did you have?

Sarcoma | Last Active: Oct 7 12:35pm | Replies (104)

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@chuck138

Welcome to the shittiest of clubs! I remember that anxiety, stress, and anger so very well. While I don't know anything about your specific situation, I can share what I went through so far. While it's certainly been a challenge, with many hurdles, for me personally the actual experience wasn't nearly as bad as I imagined. I got diagnosed with a high grade sarcoma in my thigh, Thanksgiving 2022. Surgery February 2024, followed by radiation, physical therapy, etc. My last scans have all been clean, and overall I'm doing pretty well. Even went kayaking over Memorial day weekend. I'm only sharing this so you know that it's not all doom and gloom. Ignore the statistics, because you are not one.

The best advice I have is to process the information as it comes, not as you imagine it. In other words, deal with today's problems, and not the future unknowns. What you imagine may be worse than the reality, or may not even happen at all. You already have plenty of real world worries, no point in adding new ones. Don't get too high on good news, and don't get too low on setbacks. Deal with each day as it comes. Feel free to message me if you have questions. While every treatment plan is different, there are commonalities.

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Replies to "Welcome to the shittiest of clubs! I remember that anxiety, stress, and anger so very well...."

Thank you so much Michelle and Chuck. I can’t tell you how much your words mean. Good to hear you both are doing well! I’m going be treating at Froedtert & the Medical College of WI. They are supposedly a top ranked center but one of my fears is being such a rare “c” they may not be as experienced as I need. Can you give me some tips/questions to ask at my appointment next week? Can I ask where you all have been treating? Thank you again, you have restored some of my faith and emotional well being, it’s really so appreciated!