Autoimmune Diseases and Fatigue

Just drink lots of fluids. My sodium went down to 2 percent. I was very close to going into a coma. We must watch our stats

Yes we can just napped this afternoon ,my pain in back is still there Thursday will be a week if it's no better I'm contacting the Dr

@mickie75 You are the first other Sjogren’s person that I’ve met on here.I am fairly new here, so I am sure that there are others. one of the major symptoms of sjogren’s for me is the fatigue. It is life changing. I could once hke 2 steep miles every morning, work a full day, take care of my family and household, cooking, etc, without any help at all. My kids had some chores but their time was limited because of never-ending homework..hours and hours every day. And then activities. We made it through all of that and my husband was able tostop traveleing formwork about 12 years ago. Then he had time to help. When we often look so normal, it is difficult for people to understand our fatigue and pain and other symptoms. I was diagnosed (finally) 23 years ago. When I firt became ill,noone knew what sjogre;s wasnot ten most doctors. I rest every day unless I have appointments that prevent it. I have reduced the number of appointments that I am willing to go to. I have also re4duced the number ofmeds that I am willing to take. Some times when docs don;tknow, they start experiementing. My reg doc does not do that snd respects my choices. I army own advocate. I have the final say unlestheeis some emergency. It sounds as if you have many problems. With sjogrens I am sure you know that dental problems are such sn important issue, because they can make you sick in other ways.i sam so glad that you re writing.zi look forward tohearingmore about your sjogre;s in particular. Be blessed!

Hi hemmed when we wereyounger,married ,kids and work we all had the energy to get it all done. Funny what retirement does to a person I'm 75 also been sleeping most of today,exhausted

I take for my fibro a product called Fibro Malic ,ing.,mag.malete,MSM,Oliver leaf and some others it helps me.

@upnorthnancy Yes, can relate. I too have tried just about every therapy imaginable. I will tell you this and if you have already tried, then it still is not wasted time to share what we know. What has really helped my belly bloat is when a gastro doc told me that most people become lsctose intolerant as the years past. The symptoms are bloat, belly pain, and general gut misery! This happens everytime one eats any dairy product, even a little in some other food. I use lactaid milk and almond milk, but i also chew a lactaid tablet at every meal..This simple cure after years of extreme belly problems! Fatique is difficult for us all and often people just think that we are lazy...ha! “walk a mile in our shoes”. I take nap every day about an hour after lunch 1-2 hours. I also take a fairly short walk...easy going...usually before bedtime. I have thrown out any “expectations”. If I feel like doing something, I do it when I feel like it.Please keep writing, I think that your prayers are working because you are here where you can find lots of support.Be blessed!

Lioness. I am 76 and I try to walk everyday. But, now summer is on us in Texas. I just cannot do it. My dog has to go for walks and as a responsible owner I do it. But not for far in the heat. In the winter, Spring and Fall, I walk at least 3/4 mile or better everyday. I found that the pills I was on were making me tire. It meant pain to me, but I had to quit. The pills that we are allowed to take, just make us tired. If I could have some of the better drugs, I actually obtain energy from them. I am sure some of you have that. I don't know what I am going to do. I have a nurse that comes to see me twice a week. ( I had crushed by 11th Vertibrae and could not walk. She wants me to try to get some better drugs. She has RA and her pain Dr is doing right by her. I see my pain dr in two weeks. I can already hear him say..We can give you shots in your back. NO NONO. BEEN there done that and it does not work.

My teeth cannot take this pain either. They are falling out. Please everyone be careful. My Sodium got down to 2% and I nearly went into a coma. I called 911 because I had been sick all night and had a migraine. I was furious at the hospital as they thought I was having a drug problem. They put me down the hall away from the nurses station and by other people who were evidently really coming off something. By the time I figure out what they were thinking, the doctor came and said we must admit you immediately. Here the nurse thought she was so smart and got my urine and blood work and was ready to send me home. Probably thought good Lord. 76 years old and a junkie.Jerk!!!!!!! Not only that but my teeth are falling out and that is a sign of using METH. NOT ME. I am scheduling a meeting with the Director of the Hospital This will never happen to me again or to any of you. Remember, they do not understand what we are experiencing. I am writing a letter to my Congressman and explaining to him what happened to me. I could still be in that Coma. Good Lord.

Good luck Oregongirl what do you think your teeth are calling out?is it due to your calls or medicine? It is so disgusting how we who have worked and built this co u try are being treated I wish you luck

Have you ever tried accupuncture? It's been recommended to me from friends who,ve had it for there back they swear by it .This is the first time Im having bad results from injections