Connect
Autoimmune Diseases and Fatigue
Fatigue is probably intertwined with the definition of "illness", almost any illness, but with some conditions fatigue becomes ingrained into the afflicted person's being and is a feature of their daily life. Such is the case with the highest profile disorders, cancer and cardiovascular disease, but it is just as true with at least some autoimmune diseases. I have a long history of dealing with autoimmunity and the complaint that kept bringing me back to doctors persisting in finding out what was going on was the dogged lack of energy, vitality. I got guess after guess after guess and when I got the "answer" it was basically that fatigue was part of the deal with the autoimmune disease that I have, Sjogren's, as well as I'm sure many others. So what I'm asking here is if you experience it, fatigue, how has it impacted your life and how do you deal with it? Have you found anything that you are sure mitigates it?
In my case its exercise, rest, and a fairly regulary low dose, around 50 mgs (usual recommended dose 200 mg) of modafinil, which I don't take for Sjogren's but rather for "Excessive Daytime Sleepiness" linked to Obstructive Sleep Apnea. I accidentally found out that it mitigated my general weariness. I've read some solid studies that found that American Ginseng can help cancer-related fatigue but apparently it doesn't work for Sjogren's, for me at least. Since fatigue impacts a person's total life experience in all domains, any information that might lead to dampening or controlling it would be very helpful to a lot of folks I'm sure.
Like
Helpful
HugInterested in more discussions like this? Go to the Autoimmune Diseases Support Group.
Connect
to john and lioness. thank you both. I still read your post"a because maybe you will come across something good. Keep up the good work. You are appreciated. Peach
-
Like -
Helpful -
Hug
2 ReactionsThank you Peach this what I like to do research @share what knowledge I have
-
Like -
Helpful -
Hug
1 ReactionThank you Peach (@peach414144) and Lioness (@lioness). We are all in this together.
Dear Peach and Jihnbisjop. The following is for our research files. I know what the pain feels like for the theumatoid arthritis when it kick's up. I also know what the Psoriatic arthritis pain feels lije when it kicks up. NOW: i also know what the pain feels like for the two bulging disks (lumbar spine) and pinched nerve (also which goes all the way down to the large toe). The two MRI's disclosed this. My body produces different pain for each of the different problems. I wonder,: I am sure the medical field must know this but as an ordinary layman I am curious do they. Seems it (the pains) never stops. Have had the spine pain since November 2017 and am wondering perhaps this might go away as it does with some people I know. So, if the pain is still with me after another four months I will ask the Neurologist if i at my tender age of 80 and with COPD and sleep apnea could I be a candidate for an operation. I would guess it will be a NO. This constant pain gets to a person mentally as well as physically. None of the pain pills work. I am still ho;ding on. The 2 dogs and the 2 cats keep me alive. I must be here for them as they are old also and would be 'PUT TO SlEEP' without me. I really am happy that I have the animals. To me it is as though this is one of the reasons that they are here on earth for us humans. Do not feel sorry for me for we know there are other people who have it much worse than I. Now, back to music or the television. To be continued another day. thank you for listening it does help me. With love, Peach
-
Like -
Helpful -
Hug
1 ReactionExcuse me, I meant this or LIONESS AND JOHNBISHOP. thank you peach.
-
Like -
Helpful -
Hug
1 ReactionHi Peach,lioness here I can only talk about fibromyalgia which is pain all over,and I had lumbar fracture which I was getting n pain even after my brace @therapy .It's been 17 yrs and I have to lay down every afternoon if I turn wrong,pain,if I lift semi-heavy ,pain It sounds like your pain could all benefit from fibromyalgia protocol.
Thought you did ,read above
@ Yes, it makes a lot of sense Must have a sense of humour it does help. . Fibromyalgia medication. I do have other medical problems. Uggg!!!! What meds do you take for fibromyalgia. Perhaps I am taking some now. I have many stress fractures but do not have osteoporosis and wow! do I have leg CRAMPS. Started taking magnesium pills and they are working. Shhhhh! Not to loud or it will hear me and start the cramps again. One must have a sense of humour to keep going. Thank you for caring and you take care of yourself to. Peach
-
Like -
Helpful -
Hug
2 ReactionsYou have a sense of humor and it's a must for all our problems.Research shows our body requires calcium @magnesium in all our body functions ,muscles,heart,nerves,.So I take Fibro Malic it's by Vitacost lots of what our muscles need ,magnesium,msm,malic acid diff.parts of muscles,connective tissue ,fibers I use this primarily.For creams I like Arnica gel,Epsom salt Rub also this is fairly new but Epsom salts aren't Gluten free food research suggests gluten is a problem.Vi t D3,5000 mg.Calcium use Tums at night and just before bedtime.For flare ups I drink Arnica tea get it at Rite Aid B vitamins thats about it hope some of this will help you Peach
-
Like -
Helpful -
Hug
2 ReactionsPeach instant help for leg cramps is pickle juice or mustard take care but the mag.doesn't taste as bad
-
Like -
Helpful -
Hug
1 Reaction