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Camzyos Side Effects

Hypertrophic Cardiomyopathy (HCM) | Last Active: May 25 12:07pm | Replies (14)

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I am glad you are feeling better and Camzyos worked for you.
I can't say the same for me, I was only on it for ten days and my joints starting burning on 5 mg. I couldn't sleep bad chest pains.
Called my Cardiologist and his assistant made a appointment.
When I explained my symptoms he basically said stopped taking it then.
He was rude and said what do you want me to do.
He basically in the past said there is no other option.
I've tried other medication in the past but my stomach wouldn't have it .
So now I've got to try and find another Dr that knows how to treat Hypertrophic Cardiomyopathy not a easy thing in my state.
I will if I can get in go to Mayo Clinic I four hour ride from my house.
Thank You For Your Reply Best Wishes

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Replies to "I am glad you are feeling better and Camzyos worked for you. I can't say the..."

Hello @holly1275, and welcome to Mayo Connect. I'm so glad you found this group. It must be disheartening to not be able to tolerate Camzyos. It does not work for everyone, and sadly, you sound like you are in that category. I have posted a link to use to self refer. @manuelpo also gave you some good information. There is a tab on the right side of your screen that also shows you how to Request and Appointment.
Mayo Clinic in Rochester is home to the top cardiologists in the world for treating HCM and HOCM.
I traveled from far northern California to Mayo Rochester for my HOCM, and ended up having open heart surgery. It changed my life so much and I have so much appreciation for their expertise.
I was referred to Mayo by my cardiologist who had no clue what I had. He had diagnosed me with five different heart conditions. It was not until I got to Mayo Clinic I knew what I actually had. Have you asked your doctor to be referred to Mayo Clinic Rochester? If you are not comfortable talking to him any longer, I understand that. I was so discouraged by mine too. But he did refer me, so it doesn't hurt to ask. If you are not feeling like you want to do that, have you thought of asking your family practitioner to refer you? You don't need a doctor to be seen, but I think it does help a little. It is so important that your cardiologist knows how to treat HOCM, and you should not feel embarrassed or uncomfortable to ask him to refer you. It's your life!