Has anyone stayed at the Hope House in Rochester? Gym for patients?

Posted by pjebp @pjebp, Sep 14, 2021

Has anyone stayed at the Sandra Schultz Hope House in Rochester? So, how did you like it? We are thinking of staying there, however I don't think they have a workout facility. Does the Mayo Clinic have a gym for patients?

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@mugs24cancer

We toured the Hope House but decided to stay at Homewood Suites. Did not know how I would feel during treatment and just could not put all meal preparation on my husband. Also, did not like the fact that there were no TVs in the rooms. TVs were only in commons area. Since then we have bought a townhome in Rochester. It is our “second” home. We love Rochester. It is such a positive and progressive community. When we are not there it is available for others if you would want to contact me. I know there are gyms and workout facilities in Rochester that cater to out of town folks, You might call Mayo and ask how to get a list. Hope this helps. When (and for how long) will you be there?

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Do you still rent out your condo? My husband will be back here next month for radiation for prostate cancer. Thank you!!
Kim

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Stayed there for 2 months Yes they do have workout equipment in basement as well as washer dryer pool table wifi It's all free You have to make your own food but you have your own shared refrig/freezer space plus a cupboard for dry goods Wed nite is potluck and ladies that come & sing a few songs A magician also showed up a few times. Therapy dogs came which was a nice touch as well A library with a zillion books. The kitchen has anything you would want for appliances You can walk to the clinic 5 minutes at the most Grocery store is with in 6 minute drive 24 hour security parking lot for car

Negative .... hope you do not get a room next to the kitchen, my room was right next to the kitchen so I could hear thru the walls all the cooking noise folks yakking They never shut up. And folks going up & down the stairs slamming the door. Also end of the line my room for hot water for the shower. Don't plan hot water at 8 a m as it was luke warm So I took a shower early early a m or after 10 a m lots of hot water.
Would I stay here again yes and yes It saved me huge amt of money Any thing you could want they have and it is free

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@cvestor

Stayed there for 2 months Yes they do have workout equipment in basement as well as washer dryer pool table wifi It's all free You have to make your own food but you have your own shared refrig/freezer space plus a cupboard for dry goods Wed nite is potluck and ladies that come & sing a few songs A magician also showed up a few times. Therapy dogs came which was a nice touch as well A library with a zillion books. The kitchen has anything you would want for appliances You can walk to the clinic 5 minutes at the most Grocery store is with in 6 minute drive 24 hour security parking lot for car

Negative .... hope you do not get a room next to the kitchen, my room was right next to the kitchen so I could hear thru the walls all the cooking noise folks yakking They never shut up. And folks going up & down the stairs slamming the door. Also end of the line my room for hot water for the shower. Don't plan hot water at 8 a m as it was luke warm So I took a shower early early a m or after 10 a m lots of hot water.
Would I stay here again yes and yes It saved me huge amt of money Any thing you could want they have and it is free

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Cvestor - Haven't heard how you're doing.

Hope you're doing well. You're on my prayer list.

All the best.

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@rjjacobsen

Cvestor - Haven't heard how you're doing.

Hope you're doing well. You're on my prayer list.

All the best.

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Made it thru radiation Piece of cake a few radiation burns but thats it. Have done my 1st chemical treatment 7 more to go This step is not nice And o by the way your hair will fall out Thanks to the nurse I was told this not by my localBully cancer doctor WHo bitched at me because he had to spend 20 minutes of his time working my case gee sorry buddy I keep telling them it will not grow back Staff looks at me with a raised eyebrow. Who knows their body better than the occupant So then you get stared at finges pointed But I guess you are alive but your body is shot Finally yes we killed the cancer or no not until Oct Just sorta living day by day Not like it is was And husband is still thinking mother nature will take care of this Maybe he has her phone number I sure do not No help what so ever He is still out in la la land doing his thing

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@cvestor

Made it thru radiation Piece of cake a few radiation burns but thats it. Have done my 1st chemical treatment 7 more to go This step is not nice And o by the way your hair will fall out Thanks to the nurse I was told this not by my localBully cancer doctor WHo bitched at me because he had to spend 20 minutes of his time working my case gee sorry buddy I keep telling them it will not grow back Staff looks at me with a raised eyebrow. Who knows their body better than the occupant So then you get stared at finges pointed But I guess you are alive but your body is shot Finally yes we killed the cancer or no not until Oct Just sorta living day by day Not like it is was And husband is still thinking mother nature will take care of this Maybe he has her phone number I sure do not No help what so ever He is still out in la la land doing his thing

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Chemo is not fun and as you say "living day by day" is the way it is until you complete it. You just keep going day by day as best you can manage. Be patient with yourself - this is normal.

Unfortunately, when you're done with chemo, it's not done with you... it can take 18 months for the side effects to subside (sorry), but the good news is that once the infusions are completed, you do get gradually better a bit every day.

Hang in there. You can do this and you've got people on your side!

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@rjjacobsen

Chemo is not fun and as you say "living day by day" is the way it is until you complete it. You just keep going day by day as best you can manage. Be patient with yourself - this is normal.

Unfortunately, when you're done with chemo, it's not done with you... it can take 18 months for the side effects to subside (sorry), but the good news is that once the infusions are completed, you do get gradually better a bit every day.

Hang in there. You can do this and you've got people on your side!

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I have no one except a husband that thinks Mother nature will cure this cancer. Wish I could get him into somebody to explain what is going on with my body & mine. And now the local chemo treatment center wants me to be at their site from 8 a m to 4 pm. for 2 drugs administration They are looking for money as when I was to have a port placed hospital near said that will take 6 hours Mayo said 2 hours & in reality it took 45 minutes This local hospital is like punching in as soon as you enter the door they start a clock & charge you for ever minute you are in their facility Told them not that length is not possible they are not flexible and bully stated if you want you treatment this is how it is going to be done. Their attitude was this is how we are going to play this game. I should show up at their facility fresh from being out in the barn with dirt feces and aroma smell for 8 hours I am sure they would love that So I guess I am done with any further treatments Now I just need to rip this itchy port out No that is how I am now being dumped on

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@cvestor

I have no one except a husband that thinks Mother nature will cure this cancer. Wish I could get him into somebody to explain what is going on with my body & mine. And now the local chemo treatment center wants me to be at their site from 8 a m to 4 pm. for 2 drugs administration They are looking for money as when I was to have a port placed hospital near said that will take 6 hours Mayo said 2 hours & in reality it took 45 minutes This local hospital is like punching in as soon as you enter the door they start a clock & charge you for ever minute you are in their facility Told them not that length is not possible they are not flexible and bully stated if you want you treatment this is how it is going to be done. Their attitude was this is how we are going to play this game. I should show up at their facility fresh from being out in the barn with dirt feces and aroma smell for 8 hours I am sure they would love that So I guess I am done with any further treatments Now I just need to rip this itchy port out No that is how I am now being dumped on

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I didn't have this problem at Mayo-Rochester myself. I've had some times where there are emergency situations and sometimes where they get behind so waiting does happen. I had one time where they had a clerical error and they forgot about me, but that was for other than cancer. There does seem to be a lot of "hurry up and wait", hence the large waiting rooms. That can be a be a bit unnerving at first.

I went through my surgery and port add during when COVID was running hot, so patient load may have made a difference. Mayo also allows time between scheduled appointments for food/snacks/meals/rest and walking to different buildings on their huge campus.

I have no idea how their infusion center works in Rochester - I had my infusion at Mayo Clinic in Red Wing - again during COVID so patient load wasn't overloaded at the time, however Mayo recently moved some non-cancer infusion work to Cannon Falls due to overwhelming demand. That maybe (or may not be) the case for Rochester.

While Red Wing was slightly farther away than Rochester for me, it was far easier to navigate - from free parking, to less walking, to lack of a crowd. They were wonderful there.

Last, it's most unfortunate (sad) that you're going through this alone. I have no answers for that.

Good luck with your navigation and treatment.

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