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Side Effects of Mavacamten (Camzyos)
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 2 9:22am | Replies (79)Comment receiving replies
I’m pretty sure it was raging a war inside my body. I had dizziness so bad that I could hardly function. The cardiologist kept saying ( can’t be the drug) I was on it for 5 months, before being taken off it. Then was diagnosed with Amyloidosis. Am being treated for that now with the HCM on the back burner.
Have a clearer brain now ( most days)
I’m sorry you had such rough side effects. Hopefully they can get you on something that works better.
Replies to "I’m pretty sure it was raging a war inside my body. I had dizziness so bad..."
Sorry that happened but your doc didn’t order PYP scan to rule out Amyloidosis first? Can’t be treated with Camzyos if you have Amyloidosis...
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Sorry to hear that you had all that trouble.
Glad you are feeling better
My Cardiologist says there no other options.
That Camzyos is the only drug available.
As all the other drugs caused problems for my stomach
He says surgery is not a option.
I saw him yesterday and he was rude like always .
Afraid to even ask any questions he was also saying that my side effects weren't from Camzyos.