I’m pretty sure it was raging a war inside my body. I had dizziness so bad that I could hardly function. The cardiologist kept saying ( can’t be the drug) I was on it for 5 months, before being taken off it. Then was diagnosed with Amyloidosis. Am being treated for that now with the HCM on the back burner.
Have a clearer brain now ( most days)
I’m sorry you had such rough side effects. Hopefully they can get you on something that works better.

Thank you so much for your kind words.
I am glad you found your way through all of the bad things and you are on your way to recovery.
I do hope you fire them no excuses for not listening to what you have to say.
I live in FL and was diagnosed in Dec.
I was seeing a cardiologist but he couldn't do anything with the Hypertrophic Cardiomyopathy so he referred me to a clinic in the hospital and my nightmare began🤬
My gradient is high .
I have some calcium in there but he doesn't mention that .
And here comes the bad part I wore a heart monitor and got back on the first results wrong camId number and the wrong time I wore it then got back more results four days later with the right time my name again different cam # and someone else's birth date. I called them and they said it was transcribed by a patch and the second one was mine.
They never did nothing to resolve the problem I don't trust Dr judge ment.
Thank you for kind words .
Feel better

I am glad you are feeling better and Camzyos worked for you.
I can't say the same for me, I was only on it for ten days and my joints starting burning on 5 mg. I couldn't sleep bad chest pains.
Called my Cardiologist and his assistant made a appointment.
When I explained my symptoms he basically said stopped taking it then.
He was rude and said what do you want me to do.
He basically in the past said there is no other option.
I've tried other medication in the past but my stomach wouldn't have it .
So now I've got to try and find another Dr that knows how to treat Hypertrophic Cardiomyopathy not a easy thing in my state.
I will if I can get in go to Mayo Clinic I four hour ride from my house.
Thank You For Your Reply Best Wishes

HI @holly1275 ,
Please try to go to the Mayo Clinic that is 4 hour from you. Here is their weblink:
https://www.mayoclinic.org/
Click on the upper right side where it says Login, then click where it says "create an account" then follow the prompts. After you create an account go their weblink: https://www.mayoclinic.org/
Then click on request an appointment, then you will select the Mayo clinic city location that you have closer to where you live. Each location has a "Central Appointment Office" phone number with their open office hours". Please call that number during their office hours and make an appointment. The Mayo Clinic is the best for cardiology in the USA so take advantage it is 4 hours from where you live. I am sure they can help you even when you cannot take camzyos. May God bless you and I will pray for you.

I was thinking Memorial Day was next weekend LOL yes my family all served and it is a very important holiday.
Thank you for your reply ...

Hi everyone, I have HCM and started Camzyos three months ago. My most recent echo showed "a trace pericardial effusion, which appears to be free-flowing." I’m wondering if this could be a side effect of the medication. Has anyone else experienced this? Thanks in advance for sharing your insights!