Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

catartist | @catartist | May 21 12:25pm

Been living with chronic pain (RA and now muscle atrophy) 35 years - never had a support group. Curious and hopeful.

Rachel, Volunteer Mentor | @rwinney | May 21 1:07pm

In reply to @catartist "Been living with chronic pain (RA and now muscle atrophy) 35 years - never had a..." + (show)

Hello @catartist, welcome to Connect. I think you'll like it here! My favorite thing about Connect is the encouragement and support. It's a safe space to share be heard while gaining valuable knowledge about a plethora of topics. You're in good company with living a chronic pain journey - pull a chair up to the table.

Are you mainly curious to learn from others experiences? What motivated you to explore your first support group?

ferret911 | @ferret911 | May 22 10:48am

My 55-year old daughter has just been diagnosed by a neurologist with seronrgative rheumatoid arthritis after two years of bad pain and fatigue following a Covid. Is there a group or other resource here for us?

jokolk | @jokolk | May 23 12:17am

Hi, my name is John Kolkebeck. I am 66 y.o. I've had lower back pain for a large part of my life in part d/t poor posture and bad body mechanics on lifting heavy items as well as lifting and repositioning the sick & bed bound. Although I am trying to streghten my back and use better posture & excersize. I hope to get ideas and suggestions on improving my back pain.

Thank You,
John K

cb3 | @cb3 | May 23 11:37am

In reply to @jokolk "Hi, my name is John Kolkebeck. I am 66 y.o. I've had lower back pain for..." + (show)

jokolk Hi, John. Have you spoken with your care provider about getting a prescription for 5% lidocaine transdermal patches? I can only vouch for myself by sharing my experience today. I used a patch for the 1st time and placed it along my sacrum and ... for the first time in months, I do not feel peripheral neuropathy pain in either of my feet. I'm so happy about this I could cry. I also use Stopain extra strength Roll On in front and behind my right knee, for a quick fix when I am in the local stores. But maybe I won't need that Stopain anymore. Only time will tell. I hope you find comfort soon. Best, CB

trish70 | @trish70 | May 23 1:21pm

Hello. I’m now 54 years old and have been dealing with Severe scoliosis since I was 10. Had Harrington rod surgery in 1980. Entire spine is fused. Have not grown in my torso since 1980. I have pain 24/7. I also suffer with depression, type 1 diabetes, restless legs, low thyroid, recently got a pacemaker, insomnia, arthritis in the spine and a couple other issues.
If I was a dog they would have put me out of my misery years ago. But no.. I have to live with all this every single day of my life. I’m so tired of it.

trish70 | @trish70 | May 23 1:23pm

Just a pic of me

cwhittle2001 | @cwhittle2001 | May 24 4:02am

Good morning!
I'm Catherine And I am a chronic pain sufferer. Where do you start? In many parts of my body. But I recognize that it is a condition I can manage and I'm looking for ways to do that.

Have a great day!

Rachel, Volunteer Mentor | @rwinney | May 24 11:29am

In reply to @trish70 "Hello. I’m now 54 years old and have been dealing with Severe scoliosis since I was..." + (show)

Hey there @trish70, welcome. I understand being so tired of the cards that have been dealt but what in life brings you Joy? There's got to be something. Glad you came to hang out with us here on Connect, I think you'll find a lot of good support that you're looking for. Thanks for sharing your picture, that always makes the experience feel more personal. You can add it to your profile as well.

What coping and Pain Management tools do you use to help get through your days?

Rachel, Volunteer Mentor | @rwinney | May 24 11:34am

In reply to @jokolk "Hi, my name is John Kolkebeck. I am 66 y.o. I've had lower back pain for..." + (show)

Hello and welcome John @jokolk. Back pain is certainly not fun. It sounds like you're well on your way to understanding that exercise is a huge help as well as proper ergonomics and moderation/ modification. Do you go to physical therapy or are you exercising on your own?