Eosinophilic esophagitis: What treatment helps you?

@trcollins1948, welcome. I'm tagging a few other members who live with eosinophilic esophagitis (EoE), like @tamaracaitlin @chines118 @larryh123 @fourof5zs @blackoutthesun, and who may be able to share their experiences.

Trcollins, topical steroids, like fluticasone or budesonide, are approved to treat EoE in the US. Usually a dietary therapy is tried first and possibly a proton pump inhibitor (PPI).
Here is more information from Mayo Clinic:
- Eosinophilic esophagitis: Diagnosis and Treatment https://www.mayoclinic.org/diseases-conditions/eosinophilic-esophagitis/diagnosis-treatment/drc-20372203

Have you tried the Six Food Elimination Diet (SFED) Treatment?

Dr. Jeffrey Alexander, a gastroenterologist at Mayo Clinic, explains.

my son suffers from this and just visited a doctor from the UCLA EOE Center and came away disappointed their only recommendation for treatment was stretching the esophagus (which he has done many times) he’s heard of other things like swallowing cortisone (from an inhaler) and other medications and pricedures and i wonder if Mayo has more options for treatment

i’m posting this in ENT which isn’t right but surprisingly the closest

Welcome @charleybmurphy. I moved your message to this existing discussion about EOE so you can connect with @trcollins1948 who recently asked about treatment options. See here:
- Eosinophilic esophagitis: What treatment helps you? https://connect.mayoclinic.org/discussion/eosinophilic-eosophagitis/

If you would like to seek a second opinion with Mayo Clinic experts, you can get started by submitting the online request form here: http://mayocl.in/1mtmR63

kind of you to connect me. i looked over the mayo treatment plan and it sounds better than the UCLA plan. i’ll have to see if there’s a mayo in california (?)

@charleybmurphy, If Mayo Clinic Arizona is not an option, the Mayo Clinic Care Network is a select group of independent health care providers, carefully vetted by Mayo Clinic and granted special access to Mayo's clinical, educational, research and operational knowledge, expertise and resources. The Mayo Clinic Health Network has 2 members in California, Palomar Health in North San Diego County and NorthBay Healthcare in Solano County Fairfield, Vacaville. Here's a complete list of Network members with links to their websites:
-- https://www.mayoclinic.org/about-mayo-clinic/care-network/network-members

-- Palomar Health: https://www.palomarhealth.org/
-- NorthBay Healthcare: https://www.northbay.org/

Thanks. Both are far from LA (though San Diego the better). Appreciate your effort.

Anyone dealing with nausea and IGE Esophagitis

Three docs have suggested I have this. My diet is very limited. Have you changed your diet based on symptoms? Tried an elimination diet or at least eliminated gluten and dairy?

I am sensitive to chemicals in the air, new clothing etc. and was told my lung symptoms (burning pain, shortness of breath) after an exposure to, say, new carpets or paint, is actually esophageal. I have my doubts.

It sounds like you have had a biopsy. One thing that helps me is swallowing Flovent (normally inhaled) with a very small amount of water Of course the drug company stopped making it this past year. Budesonide works too.

Eosinophilic Esophagitis in a 79 year old male.
Has anyone had Eosinophilic Eosophagitis and how was it treated?

I have used Flovent- an inhaled steroid. Instead of inhaling it, I swallowed it with a small amount of water. I am now seeking another inhaled steroid because they stopped making Flovent. I also have a limited diet. I have not had a biopsy but 3 doctors have said that EE is what I probably have.