1. < Heart Rhythm Conditions

Tachycardia and Stiff Person Syndrome

Posted by meadows @meadows, Nov 28, 2023

I've had supra ventricular tachycardia for approximately 30 years. (Mine arose soon after taking Fosamax.) The past few years, I developed stiff person syndrome and have noticed that before each "attack," my heart races very fast. It surely seems to me that the fast heartbeat first happens and then the foot/leg "attack." By attack, I mean that my feet/legs intensely push out - as if they will break. (Some do suffer fractures.) It's like there is a tremendous force pushing my feet out into eternity. I'm wondering if anyone with tachycardia- fast heartbeat has noticed this symptom. Thanks very much.

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meadows | @meadows | Apr 18 8:16pm
In reply to @harveywj "I had a bad mold problem in the crawl space of a house I bought in..." + (show)
@harveywj

I had a bad mold problem in the crawl space of a house I bought in 1999. After 5 years in 2004 I started to develop symptoms. We didn't know the house had mold much less that mold could cause a lot of neurological problems. My first problem was I awoke with anxiety attacks in the middle of the night. Later I developed fasciculations in my lower extremity muscles which then moved into trunk and arms. Then I developed severe spasms in my lower legs with my ankles and feet especially when I was laying down. Then I started having events of SVTs that where quite disturbing. I will not bother with all the other symptoms. For 2 1/2 years, after first seeing a neurologist who was clueless I was treated for Lyme disease by "Lyme Literate" doctors who were also clueless. I found my way to an MD who was at the forefront of developing testing and treatment for mold and within 6 months I was mostly recovered. The one symptom that took the longest to recover was multiple chemical sensitivity. MCS acted up when I would smell a chemical which could be anything from perfume to soap or paint or newly paved asphalt and on and on. That took a couple of years to recover. MCS also made me sensitive to drugs.

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Wow - sorry that happened due to the mold. I'm so glad you are mostly recovered - that must have been frustrating to go through to get the diagnosis. Thanks for writing.

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meadows | @meadows | May 20 4:46am
In reply to @sheeva888 "My right leg has shot straight out in the middle of the night after my 8..." + (show)
@sheeva888

My right leg has shot straight out in the middle of the night after my 8 pm meds have worn off. Now I sleep with a small heating pad around my quad that has Velcro straps. It’s meant for an arm or leg. Amazon sells them. Sunbeam is the brand. If I keep it at a fairly low setting it seems to keep the muscles just warm enough to prevent a spasm from happening.

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Thanks for responding and for your suggestion. Does your dr. think your spasms are a result of the heartbeat?

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1 reply
meadows | @meadows | May 20 4:52am
In reply to @harveywj "I had a bad mold problem in the crawl space of a house I bought in..." + (show)
@harveywj

I had a bad mold problem in the crawl space of a house I bought in 1999. After 5 years in 2004 I started to develop symptoms. We didn't know the house had mold much less that mold could cause a lot of neurological problems. My first problem was I awoke with anxiety attacks in the middle of the night. Later I developed fasciculations in my lower extremity muscles which then moved into trunk and arms. Then I developed severe spasms in my lower legs with my ankles and feet especially when I was laying down. Then I started having events of SVTs that where quite disturbing. I will not bother with all the other symptoms. For 2 1/2 years, after first seeing a neurologist who was clueless I was treated for Lyme disease by "Lyme Literate" doctors who were also clueless. I found my way to an MD who was at the forefront of developing testing and treatment for mold and within 6 months I was mostly recovered. The one symptom that took the longest to recover was multiple chemical sensitivity. MCS acted up when I would smell a chemical which could be anything from perfume to soap or paint or newly paved asphalt and on and on. That took a couple of years to recover. MCS also made me sensitive to drugs.

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Thanks very much for responding. The issue of mold did cross my mind. Did you hire someone to inspect for the mold - I hear it can be massively expensive and I know one person who was ordered to leave her home by the town. I don't see any but now wonder if it's somewhere in the attic - would that then come through the ventilation system? Thanks (via Mayo Clinic Connect Forum)

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harveywj | @harveywj | May 20 9:31am

Often you cannot see it. Sometimes it is behind the walls. I first did an ERMI test where I vacuumed up different areas of dust and sent it off for analysis. After it showed high levels of aspirgihllus I then hired someone to come 200 miles to test my house. He found the mold which was primarily in the basement crawl space and in the HVAC system. This was 2007/2008. There was also an area in ceiling that was not visible from inside the room. The inspector told us to check next to the fireplace chimney at the ceiling he was correct. Mold was every and spread esp by the HVAC system. the previous owner had an intake opened under the house where it picked up mold and spread it into the house. So depending on how bad any particular house is, it can be expensive. Because we had mold for years we figured the spores were everywhere. Dead spores are toxic as well as live ones. We ended up remolding the house when we stripped it down to clean it. the house was build in 1964 so it was in need of it. More importantly we were in need of a clean house. At that time we spent $140K but that all new insulation, new sheet rock that could not grow mold, a full basement liner and the basement was also cleaned and treated. Also a new kitchen and full HVAC system and painting.

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sheeva888 | @sheeva888 | May 20 9:54am
In reply to @meadows "Thanks for responding and for your suggestion. Does your dr. think your spasms are a result..." + (show)
@meadows

Thanks for responding and for your suggestion. Does your dr. think your spasms are a result of the heartbeat?

Jump to this post

I don’t notice any correlation with my heart rate and spasms. I just had a full heart work up…bloodwork, ultrasound, EKG and halter. All good.

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meadows | @meadows | Oct 1 10:03pm
In reply to @harveywj "I had a bad mold problem in the crawl space of a house I bought in..." + (show)
@harveywj

I had a bad mold problem in the crawl space of a house I bought in 1999. After 5 years in 2004 I started to develop symptoms. We didn't know the house had mold much less that mold could cause a lot of neurological problems. My first problem was I awoke with anxiety attacks in the middle of the night. Later I developed fasciculations in my lower extremity muscles which then moved into trunk and arms. Then I developed severe spasms in my lower legs with my ankles and feet especially when I was laying down. Then I started having events of SVTs that where quite disturbing. I will not bother with all the other symptoms. For 2 1/2 years, after first seeing a neurologist who was clueless I was treated for Lyme disease by "Lyme Literate" doctors who were also clueless. I found my way to an MD who was at the forefront of developing testing and treatment for mold and within 6 months I was mostly recovered. The one symptom that took the longest to recover was multiple chemical sensitivity. MCS acted up when I would smell a chemical which could be anything from perfume to soap or paint or newly paved asphalt and on and on. That took a couple of years to recover. MCS also made me sensitive to drugs.

Jump to this post

What type of doctor/specialist analyzes for mold? Is that a naturopath? Thanks very much.

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harveywj | @harveywj | Oct 2 10:09am

It takes someone well versed in western medicine diagnostics. Someone understands the science behind how physiology works and how to test for dysfunction. So I saw a family practitioner who happened to have a lot of experience in seeing people with exposure to neurotoxins like tick diseases, pfiesteria, and mold. He developed a protocol for neurotoxin exposure using western medicine diagnostics. He also creates a profile of health history. I went to him with a 2 1/2 years history of misdiagnosed Lyme disease.
Ritchie Shoemaker MD, Pokomoke City MD was probably in the forefront of bring sick building syndrome as an actual diagnosis into western medicine. One needs the credentials MD status to write orders for tests and treatments some of which is prescription medicine. Look up Surviving Mold. https://www.survivingmold.com
https://www.survivingmold.com/legal-resources/community/shoemaker-protocol-quick-start

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