Anyone taken Evenity (romosozumab) for Osteoporosis?

Posted by arlene7 @arlene7, May 27, 2020

Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.

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krwesolek | @krwesolek | May 15 2:06pm

In reply to @gravity3 "May I ask your age and how long after evenity you will start prolia." + (show)

60 and I’m scheduled to start Prolia a month after Evenity is finished.

gravity3 | @gravity3 | May 16 5:12am

In reply to @krwesolek "60 and I’m scheduled to start Prolia a month after Evenity is finished." + (show)

What is his plan for drug sequencing after prolia?

Maybe check out Dr. Benjamin Leder's presentation on May 21 at 7
OsteoBoston.org

susanfalcon52 | @susanfalcon52 | May 16 6:22am

In reply to @gravity3 "Can you tell me why your Endo prescribed reclast instead? My endocrinologist wants me on prolia..." + (show)

gravity3,
Both my endocrinologist and my rheumatologist said Evenity. Neither ever mentioned Prolia. I was glad they didn’t as I had heard more complaints about Prolia than any other drug.

woodsy22 | @woodsy22 | May 16 2:24pm

In reply to @lauratys "Hi, Check out the other threads on Evenity and you will find quite a bit of..." + (show)

Hi, I want to ask you if you were already suffering from joint pain due to osteoarthritis (as I am) when you started on Evenity? I am supposed to start it now, after one Reclast infusion, and I hesitate because I already have so much joint pain on top of Spinal stenosis that Im not sure I could handle additional pain from Evenity.

lauratys | @lauratys | May 16 4:57pm

In reply to @woodsy22 "Hi, I want to ask you if you were already suffering from joint pain due to..." + (show)

Hi, I never had any joint or muscle pain prior to Evenity. It has gotten better but still don't think is fully resolved and I'm not sure why. The pain made me change my exercise/workouts and that may be contributing to my reduced range of motion even after more than a year. I am 67 and had no noticeable issues at all except a not so great DEXA which took me onto this path. I had to have rotator cuff surgery so that didn't help with mobility and strength either. It's been an interesting couple of years! I wish you the best!

janglenniesmith68 | @janglenniesmith68 | May 17 8:05am

I’ve just had my 4th Evenity “infusion”. It’s 2 walloping shots each time, but I’m tolerating it extremely well with enormous gratitude for that fact. I identify as super sensitive to everything so was seriously gun shy on this one and needed a dire dexy score and a dear friend’s awful bone shattering experience, to get my attention. I’m completely on board now and really hope my scan reflects the good I feel it’s doing. I’m 68 and very optimistic. I’ll update when my year is up with my next dexy score. Stay strong y’all.

connibar | @connibar | May 17 9:17am

Hello, I was told by my Medicare advantage plan that my monthly Evenity shotes were a $20 co pay. The first month's bill was just processed and I owe over $800!! Help!!! I need one month, this is half of my social security check!!

windyshores | @windyshores | May 17 9:22am

In reply to @connibar "Hello, I was told by my Medicare advantage plan that my monthly Evenity shotes were a..." + (show)

@connibar on my Medicare Advantage we pay 20% of the cost and Medicare part B pays 80% since it is given in the office. My cost is $427/month. You might want to call Amgen to ask if there is assistance available!

nwyatt | @nwyatt | May 17 10:42am

In reply to @woodsy22 "Hi, I want to ask you if you were already suffering from joint pain due to..." + (show)

Where is your joint pain? I started having pain in my left upper to mid back(sometimes not much and other days very bad) shortly after starting Evenity last June. Over the last few months it seems to have gotten worse. I finally went to a pain management Dr. who said I have osteoarthritis in my spine and prescribed Meloxicam. (He never even examined me, just looked at my MRI but I was desperate so went along.) I'm not sure it's helping since some days the pain is almost debilitating. I also went to PT and got massages, use heat and or ice and stretch. Sometimes that helps but not always. I just sent away for a medical marijuana card hoping I'll get some relief. I only have one more shot of Evenity so I'm sticking it out. After that? Fosamax possibly.