Connect
Anyone taken Evenity (romosozumab) for Osteoporosis?
Has anyone taken Evenity? I understand it’s only been on the market for a little over a year. I’m hoping it will help with my severe osteoporosis. Any information is helpful.
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
I have had two doses of eventity so far. I do experience the sometimes overwhelming fatigue and also increased joint pain. I have aso noticed that I feel very anxious as well as brain fog and some memory loss which is not my usual mental state. Makes me think evenity may be the cause but the literature gives little info on this possibilty. Have any of you had such reactions with the evenity treatment?
-
Like -
Helpful -
Hug
1 ReactionAnxiety yes. Brain fog, memory issues and weird dreams, yes. But they eased up after a few doses. For me, what did not ease up was burning, prickly sensations. I did not have joint pain or fatigue.
ps I had COVID 6 weeks before and still wonder if the memory issues were from that
I did not have the memory problems before this. I am thinking to try the next dose yet and hope some of my issues start to resovle as it is hard to function at this point. Thanks I do appreciate any input. I was also very leary about starting the regime because the purpose may seem good but the side effects make me wonder about the chemical's affect on the rest of my body.
I have not. I'm into shots 8.
Hi, Check out the other threads on Evenity and you will find quite a bit of information. I never experienced the fatigue, brain fog or amxiety issues but did have quite debilitating joint pain which began after the 6-7 months of treatment. Completed 11 mos and couldn't take not being able to move without pain in muscles and joints-hips were the worst but every joint right down to my fingers to one extent or another. Hope all goes well and the information on these threads are very helpful. You know "you" best so don't discount how you are feeling.
-
Like -
Helpful -
Hug
1 ReactionFinished a year course of Evenity in February with no side effects (though hard to tell side effects from just 81-year-old aches and pains). Dexa scan + blood work show significant improvement. Now on first shot of Prolix so will see how that goes.
-
Like -
Helpful -
Hug
2 ReactionsHi:
I will add my experience with Evenity. I had a compression fracture in December, 2021 and started Evenity in 2022. It was great until month 5 and started with fatigue, brain fog and rash on my scalp and ears, cheeks. I also had joint pains.
I stopped after month 8, then did a Reclast infusion November 2022. I had some gains but still osteoporosis in lumbar spine.
I’m going to Osteostrong now and not taking any medicine.
Hoping that helps - no other fractures since.
@leslie2121 so you only had one infusion of Reclast?
I have my 12th injections of Evenity tomorrow. After the first one, I had some fatigue. After that, no obvious side effects. I already had joint aches and pains, so I can’t blame that on Evenity.
Monday, I am having a dexa, so anxious to see if there are gains.
In June, I go on Reclast.
I don’t want to sound casual about any of this. All very anxiety provoking.
In the year that I have been on this journey, I have worked hard to gather information.
I have learned the most from (in this order):
1. This site and it’s posters
2. Dr. McCormick and all the other docs with YouTube videos 🙂
3. My endocrinologist and my rheumatologist
My level of trust also goes in that order.
-
Like -
Helpful -
Hug
9 ReactionsCan you tell me why your Endo prescribed reclast instead? My endocrinologist wants me on prolia after evenity. Says that is because I was on alendronate for 5 years prior to Evenity. This journey sucks!!!