Anyone diagnosed with a primary neuroendocrine brain tumour?

Posted by frendo @frendo, Mar 4 12:44pm

My wife (45 yo) was diagnosed with a primary neuroendocrine (or neuroblastoma - it has not been possible yet to identify which one) brain tumour. It was deemed as not operable because too infiltrated. She started the first cycle of chemotherapy with cisplatine and epotoside. Any experience with this form of tumour, effectiveness of treatments, etc.? Thank you

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Colleen Young, Connect Director | @colleenyoung | Mar 12 6:06pm

Hi @frendo, I added your discussion to the Neuroendocrine Tumors support group as well as the Brain Tumor support group. How is your wife doing so far on chemotherapy?

frendo | @frendo | May 14 2:05pm

Thank you Colleen. She has just completed the fourth cycle and evidence from latest MRI that there is some positive response. Also, no significant adverse side effects so far. Leaving every day as it comes and trying to remain positive.