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Does anyone have neuropathy related to MGUS?

Posted by quarksunite @quarksunite, Feb 18, 2023

I have neuropathy in my feet and lower legs caused by MGUS the docs tell me, I do not have pain - just numbness. Does anyone know of any supplements or drugs that help alleviate the numbness?

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canderson12 | @canderson12 | May 14 10:46am
In reply to @kayabbott "I am 69 and have mild polyneuropathy (mainly loss of feeling in arms and legs) from..." + (show)
@kayabbott

I am 69 and have mild polyneuropathy (mainly loss of feeling in arms and legs) from IgA kappa light chain MGUS (8 years) and/or celiac disease. My MGUS is asymptomatic so I just use my hands and feet to keep the nerves engaged (woodturning and other hobbies). I use bioavailable curcumin (otherwise curcumin in turmeric is poorly absorbed); I don't know yet if that will impact my kappa numbers. Here is one link for foot bathing/massage and neuropathy; because it relates to chemo damage it may not apply to us as much: https://pubmed.ncbi.nlm.nih.gov/25275582/ . There are a lot of ads for TENS ems stimulation of nerves, but good to check with doctor or PT on that. ResearchGate has some pubs on massagers being good for peripheral neuropathy: https://www.researchgate.net/publication/339846541_The_Effect_of_Foot_Massage_on_Decreasing_Peripheral_Neuropathy_Diabetic_Complaints_in_the_Patients_with_Type_2_Diabetes_Mellitus . A lot of the research is tied to diabetic neuropathy. I generally recommend a food log and elimination or FODMAP diet, in case any foods result in GI or other inflammation.

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Yes I have neuropathy in limbs causes me to fall often

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kayabbott | @kayabbott | May 14 11:39am
In reply to @canderson12 "Yes I have neuropathy in limbs causes me to fall often" + (show)
@canderson12

Yes I have neuropathy in limbs causes me to fall often

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Years ago I kept falling, on ice, down stairs... So that was when I was diagnosed with polyneuropathy. I had PT to work on balance and that helped a lot. Strengthening exercises help by stabilizing joints; easier to catch yourself. I have a half-moon Bosu balance ball that I stand on, There are also online exercises for balance, but I sometimes stand on one foot and balance when I'm waiting in lines (I probably look like a flamingo).

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