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Living Life after your Transplant
Transplants | Last Active: Dec 10, 2023 | Replies (118)Comment receiving replies
Thank you for reply. Painting is going well. The tarps are magnificent and cover everything. My biggest fear was if someone would bring in flu or something. But the only coughing from crew is asthma and smoking related. We are having a mild weather spell and we are able to let some fresh air in during the sunny days. When they have gone home at end of day, I let loose with the disinfectant aerosol and wipe all surfaces with disinfectant wipes or cleaner. Rosemary
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@rosemarya Rosemary, when we went to Italy I had only had a couple of short lived HE episodes, plus the husband in the couple we are close with and frequently travel with is a doctor, albeit a OB/GYN, but he has a lot of general knowledge. He, along with a friend in NYC, thought my problems were due to medications -- a BP medication, Vesicare, and one other, maybe cholesterol, and suggested I get off of those meds. My BP was not that high and now generally goes from the teens to 130 on the high number and is in the 60's on the lower number so it is not a problem. I told the PCP I had then and went three months with no problem so we thought that must have been it. Unfortunately after three months I did have another episode, so obviously it was coincidental that after stopping them I went for so long without an episode. My episodes almost all lasted a matter of hours. I would go to bed and wake up fine.
That really is great that they paid. I had very low hemoglobin and hematocrit counts in August and ended up going by ambulance from here in NH to Boston -- the doctor at the hospital in Manchester was obviously not comfortable with me. The ambulance ride, chatting away with the EMT was the best part of my problems! I must have been one of his easier patients because I felt fine. They sent me by ambulance though because apparently if my numbers dropped any lower I could have had cardiac arrest. I just felt debilitatingly tired. As you know, it is a bit scary to discover you are in such a life-death predicament. After my initial alarm though I felt pretty calm about it.
I hope you have a good weekend as well. Believe it or not the last three days the temperatures here in NH have been 68 - 69, warmer than CA or FL from what I have seen. My son lives in southern CA so he is always giving me a hard time about how cold it is here but he goes to one ski area or another almost every weekend, this weekend at Mammoth, but being cold to do something you love is different than just living it it every day for a number of months. I know these temperatures will end shortly and there will be more snow, something I presume you see very infrequently in Kentucky. It will be May before we see blooms up here.
JK