Diagnosed last week with AFIB

Posted by starlight3 @starlight3, May 10 9:19pm

I was sent recently for an ECG, and it was confirmed I have AFIB. I don’t know how long I have had it. I can’t get an appointment in cardiology at Mayo and I’m on a wait list. I was offered an appointment mid July but I’m leaving for the U.K. mid June for five months. I’m worried that I’m not having any treatment and know the risks as my wife has it and is on medication. What should I do?

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@starlight3

I will feel much better when I have an appointment with a cardiologist. Right now I have a good idea of what is needed but I am so frustrated by the lack of empathy and response from my doctor and the cardiology department. I am well aware of the implications of no treatment and that makes it all the more frustrating. I will keep you posted and will hope for the best.

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Afib is the "common cold of cardiology" and there are a lot of people with it. That is no excuse for a lack of empathy. Look up your CHADS2VASc score or CHADS2DS2VASc
https://clincalc.com/cardiology/stroke/chads.aspx
https://clincalc.com/cardiology/stroke/CHADSVASC.aspx

That can either help you relax a bit (if risk is low) or perhaps get more attention if it is higher. You may still be low risk. Not there isn't a need to hurry, with you going away....

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@windyshores

Afib is the "common cold of cardiology" and there are a lot of people with it. That is no excuse for a lack of empathy. Look up your CHADS2VASc score or CHADS2DS2VASc
https://clincalc.com/cardiology/stroke/chads.aspx
https://clincalc.com/cardiology/stroke/CHADSVASC.aspx

That can either help you relax a bit (if risk is low) or perhaps get more attention if it is higher. You may still be low risk. Not there isn't a need to hurry, with you going away....

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Thank you for the links and I’m considered Hugh risk on both. All the more reason for action!
Thank you for your support.

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Very few specialists experience the condition they study and entreat to improve. Heart arrythmias affect some much more than others, while many haven't the slightest idea they're in arrhythmia. But, the cardiologists deal with so many with the same problems that how it makes their patients feel is sometimes the least of their professional worries. They're trained to deal with numbers, lab reports, diagnostic imaging results, and instructions....no to mention hospital policies.

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I gathered that. I just wish that I could get some of those tests done so I can get on with treatment and not be left hanging out dry! I always thought heart issues were a priority but apparently not.😩

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@starlight3

I gathered that. I just wish that I could get some of those tests done so I can get on with treatment and not be left hanging out dry! I always thought heart issues were a priority but apparently not.😩

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@starlight maybe if you mention your CHADS score to your PCP, they will advocate for you. You could see any cardiologist who is available and remain on the Mayo wait list (and call at 10am!). This is a difficult situation with you departing for the UK and puts more pressure on you. Let us know what happens!

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@windyshores

@starlight maybe if you mention your CHADS score to your PCP, they will advocate for you. You could see any cardiologist who is available and remain on the Mayo wait list (and call at 10am!). This is a difficult situation with you departing for the UK and puts more pressure on you. Let us know what happens!

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Thank you I will take your advice and definitely let you know, and everyone who has kindly lent support, what the outcome is.👍

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@starlight3

Thank you so much fr your helpful information. I have ordered a Kardia and I have spoken to my primary care doctor through the Mayo portal. He has suggested taking aspirin everyday and would be reluctant to do anything else. My ECG was ordered through the sleep centre and so they have to coordinate my appointment with the cardiology department. That’s how things are done now at the Mayo. Whoever orders your ECG is responsible for coordinating your appointment. I have no idea how often or how long I am in AFIB as I have no symptoms. Now and again I get a feeling like a little electric shock which is almost over before it begins. Don’t know if this is related. I do have access to healthcare in the U.K. but of course would prefer to be treated here before I go as I have been a patient at the Mayo for over 17 years and they know my full history. I have been calling the sleep centre everyday at 8.00am and 3.00pm with no luck. I will try 10.00am and see if I do better. Thank you again. I really appreciate you taking the time to answer me!

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If you are anywhere near London over the next 5 months…there is now a Mayo Clinic in London (W1B 1PT) +44 20 7871 2575. I would assume they would have access to your Mayo records in the USA…may be worth a call before you leave. (I’m also a Mayo patient; our son lives in the UK, US Embassy.)

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What should you do? #1 do not get on an airplane for a long flight. If you absolute must fly to England then make sure you get up often and walk around. It is well documented that sitting for long periods on flights increases the risks of clotting even if one is not in Afib. Wear compression hose to improve blood flow from your legs. #2. Do not listen to people here telling you what drugs to take. Some of these drugs come with significant side effects. Some are meant to reduce your heart rate. Your HR may not be high enough to take these drugs. Some are also used to reduce BP but you do state what your BP is. No one here is qualified to suggest taking drugs just because they or someone they love takes drugs. I only take Eliquis for Afib. I do not need any other drugs. But that is just me and just because I do not need additional drugs doesn't mean I should tell you that you do not need further intervention.
Take Afib seriously as it can cause a clot and or kill you. CDC says" In 2019, AFib was mentioned on 183,321 death certificates and was the underlying cause of death in 26,535 of those deaths."
https://www.cdc.gov/heartdisease/atrial_fibrillation.htm
That is deaths only. Strokes caused by brain clots debilitate thousands every year. So do not listen to those who say Afib does not kill.
From the same article I linked above. "AFib increases a person’s risk for stroke. When standard stroke risk factors were accounted for, AFib was associated with an approximately fivefold increased risk of ischemic stroke. AFib causes about 1 in 7 strokes.
Strokes caused by complications from AFib tend to be more severe than strokes with other underlying causes. Strokes happen when blood flow to the brain is blocked by a blood clot or by fatty deposits called plaque in the blood vessel lining."
2 months is a long time for a newly diagnosed person to wait to find out how involved your Afib is. Do you have other options at least to see if you need an anti-clotting agent to protect you until you see a Mayo doc? For years I managed intermittent Afib with only taking Eliquis during and shortly after I had an event. But I always knew when I was out of rhythm. You state you do not know how bad your Afib is. Think again how important this trip to England is for you. Do you really need to fly long distances and be out of country for that long a period?

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@harveywj

What should you do? #1 do not get on an airplane for a long flight. If you absolute must fly to England then make sure you get up often and walk around. It is well documented that sitting for long periods on flights increases the risks of clotting even if one is not in Afib. Wear compression hose to improve blood flow from your legs. #2. Do not listen to people here telling you what drugs to take. Some of these drugs come with significant side effects. Some are meant to reduce your heart rate. Your HR may not be high enough to take these drugs. Some are also used to reduce BP but you do state what your BP is. No one here is qualified to suggest taking drugs just because they or someone they love takes drugs. I only take Eliquis for Afib. I do not need any other drugs. But that is just me and just because I do not need additional drugs doesn't mean I should tell you that you do not need further intervention.
Take Afib seriously as it can cause a clot and or kill you. CDC says" In 2019, AFib was mentioned on 183,321 death certificates and was the underlying cause of death in 26,535 of those deaths."
https://www.cdc.gov/heartdisease/atrial_fibrillation.htm
That is deaths only. Strokes caused by brain clots debilitate thousands every year. So do not listen to those who say Afib does not kill.
From the same article I linked above. "AFib increases a person’s risk for stroke. When standard stroke risk factors were accounted for, AFib was associated with an approximately fivefold increased risk of ischemic stroke. AFib causes about 1 in 7 strokes.
Strokes caused by complications from AFib tend to be more severe than strokes with other underlying causes. Strokes happen when blood flow to the brain is blocked by a blood clot or by fatty deposits called plaque in the blood vessel lining."
2 months is a long time for a newly diagnosed person to wait to find out how involved your Afib is. Do you have other options at least to see if you need an anti-clotting agent to protect you until you see a Mayo doc? For years I managed intermittent Afib with only taking Eliquis during and shortly after I had an event. But I always knew when I was out of rhythm. You state you do not know how bad your Afib is. Think again how important this trip to England is for you. Do you really need to fly long distances and be out of country for that long a period?

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Thank you for your mindful comments. I will not be flying to the U.K. I am going by ship. I am going to ask for a referral on Monday to an outside cardiologist and still remain on the Mayo waitlist. I find it unbelievable myself that there is no concern or follow-up since my ECG. Short of my primary care doctor suggesting an aspirin a day that is it. I am very disappointed in how there is no concern anywhere for my condition especially from a world renowned hospital like this. Not good for their reputation.

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@gdcm

If you are anywhere near London over the next 5 months…there is now a Mayo Clinic in London (W1B 1PT) +44 20 7871 2575. I would assume they would have access to your Mayo records in the USA…may be worth a call before you leave. (I’m also a Mayo patient; our son lives in the UK, US Embassy.)

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Yes I am aware of this and have it in mind. I may have to rely on treatment over there if I can’t make any headway here. The Royal Brompton Hospital in London is also an option with its worldwide cardiology reputation for excellence. Thank you for your response.

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