Timing of Reclast Infusion after your last Evenity Injection.

Posted by rhondat23 @rhondat23, Apr 28 8:12pm

My doctor said I would not receive a DEXA Scan or start Reclast Infusions for one year from my last Evenity Injection. Can you please share what each of your doctors are advising? Thank you!

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@ripley

Please keep us posted on how you continue to do on Reclast. My Dr recommended it for me, and I'm afraid of the possible side effects I've read about. Thanks.

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I understand being afraid. I was as well. I was fine all day yesterday. Today I have some pain in my lower legs but completely tolerable.

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@friend123

I am so nervous about the injection. Do you have any advice? My doctor tells me not to listen to “Dr. Google”.
How are you feeling?
Thanks

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I was a nervous wreck before my injection. However, it went very well. I had them extend the duration to 1 hour and I made sure to drink plenty of water the day before. I did take Tylenol and they gave me water during the injection. Today is day 3 and my lower legs hurt some but not bad. I'm hopeful that will be all. Good luck!

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@dna41

I was a nervous wreck before my injection. However, it went very well. I had them extend the duration to 1 hour and I made sure to drink plenty of water the day before. I did take Tylenol and they gave me water during the injection. Today is day 3 and my lower legs hurt some but not bad. I'm hopeful that will be all. Good luck!

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Thank you! I do need to get some dental work done. After that my dr told me to call back two months after that work is completed.
Good luck to you as well! Please keep us posted!

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@ripley

Are you currently taking Evenity?

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@ripley Hi there. Yes, I've had 7 shots so far. Only the very slightest of side effects. And wondering which of the scary choices to try after the Evenity. And certainly I will get a DXA immediately after Evenity and before anything else. Fingers crossed.

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@windyshores

Then normal dose is two shots. I am petite, 5'2" and 105 lbs and my expected dose was still two shots. I actually declined the second shot a couple of times and was told noone else had ever done that.

You can do Prolia or Reclast (or possibly alendronate, which is Fosamax, but only if you cannot do Reclast). My doctors won't use Prolia. You would have to do Reclast after Prolia anyway.

If you are sensitive, ask about having a 1 mg dose of Reclast (usual dose is 5mg) with hydration, tylenol and slow infusion. This could be a test dose. I also have autoimmune disorders and sensitivity. There really is no option to skip a follow up med at this time.

Prolia and Evenity are both made by Amgen and the Evenity website suggests Prolia as a follow up, for obvious reasons. But you can do Reclast instead and many if not most are, according to my doctors.

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Why do you say only take Fosamax if you can't take Reclast? Isn't Fosamax a good choice also? I was leaning that direction.

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@windyshores

I get it. I have 7 spinal fractures. My first was T12. If yours was recent, take heart, things can improve. I recently walked 16 miles in two days.

I don't know if estrogen will hold gains from Evenity. I have not seen any info on that. I had hormonal breast cancer so that option is not one I have looked into. And estrogen is not recommended if we are over 60. SERM's like raloxifene are a possibility without the cancer risk.

Reclast lasts a long time in the body. We may be able to take drug holidays with monitoring. My hope is that drug holidays can be lengthy along with some more holistic maintenance as well.

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Did not know about SERMs so will definitely read-up and ask about it. I was hoping it would help in a way these bone meds could be taken at a reduced dosage and possibly allow more drug holidays.

My T11 fracture has healed and now T10 has stated. It is the T12 compression wedge fracture - only the top part of the front facing vertebra broke. This is the problem as it has caused the natural curves of the spine to change with a large lump further up my back. I cannot stand straight, always hunched forward with a curved spine - kyphosis
As the day continues, the bending/pain gets worse

To correct this I am told rods are to be placed from T12 to T2 on both sides to reduce the kyphosis/bending. I have lost 4 inches of height. It will not heal and only get worse.

Enduring these bone meds and the thought of this surgery has me in a place I couldn't imagine was possible.

I think my Grandfather must have had a similar condition as he suffered with bending and lumps. Surgery was not done for this condition then and his walking sticks eventually were not enough and he became bedridden.

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@jillgirl

Did not know about SERMs so will definitely read-up and ask about it. I was hoping it would help in a way these bone meds could be taken at a reduced dosage and possibly allow more drug holidays.

My T11 fracture has healed and now T10 has stated. It is the T12 compression wedge fracture - only the top part of the front facing vertebra broke. This is the problem as it has caused the natural curves of the spine to change with a large lump further up my back. I cannot stand straight, always hunched forward with a curved spine - kyphosis
As the day continues, the bending/pain gets worse

To correct this I am told rods are to be placed from T12 to T2 on both sides to reduce the kyphosis/bending. I have lost 4 inches of height. It will not heal and only get worse.

Enduring these bone meds and the thought of this surgery has me in a place I couldn't imagine was possible.

I think my Grandfather must have had a similar condition as he suffered with bending and lumps. Surgery was not done for this condition then and his walking sticks eventually were not enough and he became bedridden.

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I have kyphosis too. I have never heard any suggestion of rods. Most people with fractures have some degree of kyphosis. I have also lost a lot of height and the reduced space inside causes problems with eating, heart and breathing.

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@nwyatt

Why do you say only take Fosamax if you can't take Reclast? Isn't Fosamax a good choice also? I was leaning that direction.

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@nwyatt I have been told by docs and read in "Great Bones" by McCormick, that Reclast is the most potent way to "lock in gains" from Tymlos, Forteo or Evenity. Fosamax is less potent but people on this forum seem to have done well with it. Moot point for me due to GERD!

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@windyshores

I have kyphosis too. I have never heard any suggestion of rods. Most people with fractures have some degree of kyphosis. I have also lost a lot of height and the reduced space inside causes problems with eating, heart and breathing.

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The neurologist calls my condition "exaggerated thoracolumbar kyphosis with a positive sagittal malalignment." After discussion of the pain and problems walking without a walker and difficulty breathing his other questions centered on 'Does this bother you psychologically and how does it affect your social life?' ???
I also have scoliosis. Often children with severe scoliosis have their surgeries much earlier.

I have had so many medical terms thrown my way, both with the bone meds and thoracolumbar kyphosis I now keep a notebook.

I have listed a link to better explain the surgery. The surgery cannot be done with my bones in the current state due the necessary fusions to maintain the rods in correct position. Evenity builds bone the fastest so I must finish the 12 months of injections. Hopefully the next bone med will be tolerated better.
https://www.neurosurgery.columbia.edu/patient-care/conditions/sagittal-imbalance
Treatments------
Because the causes of sagittal balance vary from patient to patient, no two procedures are identical. The overall goal of these operations, however, is the same: to reestablish overall sagittal spinal balance. As the general problem is that there is either not enough lumbar lordosis or too much thoracic kyphosis, surgery is generally planned to add lordosis or reduce kyphosis, or both.

Most surgeries to correct sagittal imbalance can be explained in three parts.

Correct the spinal deformity: This is usually accomplished via an osteotomy or osteotomies. During this procedure, the spine is loosened by removing a bone. The extent and location of removal depend on a variety of factors, such as the location and type of spinal deformity.
Spinal fixation: After the spinal deformity has been corrected, the spine is fixed into its new alignment with metal screws and hooks, which is referred to as fixation. These screws and hooks, each of which attaches to one vertebra (bone in the spine), are then connected with long rods that are shaped to match the new spinal alignment.
Spinal fusion: The surgeon will implant bone graft material, pieces of bone that bridge gaps. The bones will fuse (grow together), helping to make the spine more stable. The long-term success of sagittal imbalance surgery depends on achieving good bone fusion. Note that certain lifestyle factors, including smoking and obesity, inhibit bone fusion.
Treatment o

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@windyshores

@nwyatt I have been told by docs and read in "Great Bones" by McCormick, that Reclast is the most potent way to "lock in gains" from Tymlos, Forteo or Evenity. Fosamax is less potent but people on this forum seem to have done well with it. Moot point for me due to GERD!

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I am hoping I don't get the stomach issues or the back pain from Fosamax. If I do I may try Reclast, I just don't look forward to the 90 minute drive to the hospital to get it. But it is just once a year. And the side effects from Reclast scare me a bit.

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