JOHN: What brought you to Mayo Clinic Connect?
@roch: Breast cancer. When I was diagnosed with breast cancer at Mayo Clinic, they handed me a folder with lots of information. I think that is where I first read about Mayo Clinic Connect. While I had medical advice from providers, the support group was where I could ask questions about what to expect and how to prepare for surgery, chemo, radiation, and medications. Reading comments, I learned about other tests and what questions to ask providers.
JOHN: What motivates you to take part in the community?
@roch: Combination of obtaining and giving information. When I see a question and I have been in the same situation, I want to help someone else get through a stressful time.
JOHN: What about Mayo Clinic Connect makes you feel comfortable to share and to be open with the community?
@roch: It is a safe environment. I appreciate that the community is hosted by Mayo Clinic and monitored by Mayo Clinic employees and volunteer mentors to make sure inappropriate information is removed. There is nothing that identifies who you are unlike Facebook. So, you can have personal and sensitive conversations without all your friends on Facebook knowing about your issues.
JOHN: What support groups do you participate in?
@roch: Currently I spend most time in the Visiting Mayo Clinic and Bariatric Surgery & Weight Loss support groups. I am a lifelong resident of Rochester MN and have been a patient of Mayo Clinic since birth, so I can often offer advice on visiting Mayo and Rochester. I had weight loss surgery 10+ years ago at Mayo and am familiar with some of the pre and post op issues with bariatric surgery.
But you will see me in other groups occasionally. If I see a discussion that I think I can provide help with, I will comment.
JOHN: Tell us about a meaningful moment on Mayo Clinic Connect.
@roch: In June 2018 I made my first post: “Breast Surgery; any advice to prepare for surgery?” The responses were wonderful. I am the type of person who likes to be prepared and the more information I have, the more I feel in control. When I met with the surgeon, she discussed the technical parts of surgery, but the community members provided me with practical advice.
JOHN: What surprised you the most about Mayo Clinic Connect?
@roch: How willing people are to help and support each other. Often it feels like a virtual hug from strangers. Also, I am amazed at the medical knowledge many members have. Though most members are not medical professionals, they have taken the initiative to research their medical situations and share what they have found with others.
JOHN: What energizes you, or how do you find balance in your life?
@roch: Volunteering energizes me. Besides being a volunteer mentor on Mayo Clinic Connect, I volunteer in other areas on campus at Mayo Clinic in Rochester. Weekly I volunteer at St Mary's in my assigned area and also take part in special projects as needed. If you’ve ever been to a Mayo Clinic campus, you may have seen volunteers, at information desks, gift stores, with a therapy dog, or other areas, helping patients and visitors. The volunteer assignments are beneficial to both patients, visitors, staff, and to the volunteer themselves. I personally get a great deal of satisfaction helping others in what can be a very stressful environment.
My other volunteer assignment is working with students at Mayo Clinic Alix School of Medicine. In the Senior Sages Program medical students are paired with senior community members to learn more about the aging process from someone who knows it first hand — seniors. I have two medical students that I meet once a quarter to review topics about memory, medications, advance care planning, and other topics that affect aging.
Volunteering is my way of giving back to Mayo Clinic who has helped me in many ways over the years.
JOHN: Tell us about your favorite pastime or activity
@roch: As spring and summer come to Minnesota, I enjoy doing anything outside. I also like to read; my favorite author is John Sandford (John Roswell Camp).
JOHN: Do you have a favorite quote, life motto or personal mantra?
@roch: A version of the Golden rule, “Treat others the way you want to be treated.”
Sometimes it is the smallest task that can make someone’s day better. A simple example is when I am on the Mayo Clinic campus and see someone staring at a map, I will ask if they need help finding somewhere. The Mayo campus can be intimidating when there first time, and even though people are willing to help if asked, some people are afraid to approach a stranger to ask. If I take initiative to approach them, they are grateful.
JOHN: Puppies or kittens?
@roch: Puppies, mostly because I’m allergic to cats. I currently have a Cavachon (a Cavalier-Bichon mix). She was 8 years old when I adopted her during my cancer treatment. It motivated me to get up and take care of her on days when I just wanted to stay in bed. Her name is Paris, not my favorite name but I did not want to rename her. The one word that best describes her is DIVA!
Member Spotlights feature interviews with fellow Mayo Clinic Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.
Hello @marivic09, if you'd like to request an appointment with Mayo Clinic to learn more about kidney transplant, you can get started here, http://mayocl.in/1mtmR63. You may also find useful information from Mayo Clinic's Transplant Center, https://www.mayoclinic.org/departments-centers/transplant-center/home/orc-20203891.
On Mayo Clinic Connect, you may find the following support groups worth exploring:
Kidney & Bladder - https://connect.mayoclinic.org/group/kidney-conditions/.
Transplants - https://connect.mayoclinic.org/group/transplants/
Hello @roch
I so enjoyed getting to know you. So many of us came to Connect as a result of a cancer diagnosis. It does make a difference to be able to have others share this journey with us and I'm so happy that you have shared your journey with others. It is great to give-back and Connect is just the place to do this.
I have a rescue cat who is also a Diva and she always reminds me of that! Thanks for all of your volunteer work at Mayo, both online and in-person. I know it is appreciated.
@johnbishop: Thanks for introducing us to @roch!
It's always inspiring to here about people helping each other.
About a month ago, I had a little toy here from who knows what. My neighbor has a little boy and I gave him the toy to give to his son.
A week later, his wife said that the little boy did not want to go to school one day and the only way they were able to get him inside the car, was to bring the little toy with him.
That just made me feel like a million bucks!
@samcal9977zz
Thanks for sharing, it is amazing how the little things make a big difference. A week ago my elderly neighbor asked if I had jello mode, she want to use for a mold for a birdfeeder. Not sure if I ever owned a jello mode. Then today at garage sale saw one for 50 cents and bought for her. It made her day. Small acts of kindness bring smiles to others.
Laurie
Yes, exactly. We share a bit with others...and everyone is then making everyone else's life a little better. Instead of all that walling off from each other, endless competition with each other. And all the little destructive behaviors we engage with, that ultimately destroy our peace and happiness.
Thank you, Laurie. Paris is a different girl with her haircut. Aren't dogs wonderful companions? Do yours love to learn new tricks? Roxie always came and found me at about 9:00 p.m., which was trick time. She sometimes tried to just go ahead without me.
Chris
Paris is adorable!
Hi John
I live in Toronto, Canada. How and where can I go to visit the Mayo Clinic?
@prudencemorton
Mayo Clinic has three major locations in Arizona, Florida, and Minnesota.
https://www.mayoclinic.org/locations
To find out more about services for international patients, see this web site:
https://www.mayoclinic.org/departments-centers/international/appointments
Also, Mayo Clinic Information Service in Canada
https://www.mayoclinic.org/departments-centers/international/locations/canada
Is there a specific reason your interested in going to Mayo?
I was told that I have peripheral neuropathy in my feet and that it is small fibre neuro, by having a nerve conduction test, Given gabapentin 300 mg/ day and told that’s all that can be done, I feel that I was not tested enough and want to know if there is anything that can be done, I just started having intestinal issues and GP says it’s not neuro causing it. But I’ve read that it is possible caused by neuropathy. So want to know what else can be done.