1. < Neuropathy

Neuropathy: What works and what are scams?

Posted by bigjohnscho @bigjohnscho, May 2 6:09am

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.
What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
John, Volunteer Mentor | @johnbishop | May 6 6:18pm
In reply to @mlee5309 "Have you ever tried a hyperbaric chamber? I can’t find any personal anecdotes of anyone who..." + (show)
@mlee5309

Have you ever tried a hyperbaric chamber? I can’t find any personal anecdotes of anyone who has for neuropathy

Jump to this post

@mlee5309, You might want to look through discussion and comments on hyperbaric treatments for neuropathy I found using the search on Connect - https://connect.mayoclinic.org/search/?search=hyperbaric+treatments+for+neuropathy.

Also, there is a 2021 research article that might provide more information for you.
--- Mechanistic Rationale and Clinical Efficacy of Hyperbaric Oxygen Therapy in Chronic Neuropathic Pain: An Evidence-Based Narrative Review
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8084668/

REPLY
bkfoster1 | @bkfoster1 | May 6 8:59pm

Have any of you tried the Nooro electrode? It's a patch that you charge in the wall, then place on your leg/knee/calves/etc., and push the activator on the patch to increase the electric intensity or decrease. It turns itself off in about 10 minutes, then I move it to a new place. This has made a huge improvement in the amount of burning and pain I get when I sleep. I put Nooro on about 4 or 5 places an hour or so before I go to bed. I'm getting longer and better sleep between wake times, and fewer of them.
Barb

REPLY
norelle27 | @norelle27 | May 6 10:10pm

So I’m in the same boat - neuropathy in both feet, non-diabetic and continues to get worse.
I work on my feet and up to 8 hours. I have a terrible time finding shoes that fit( high arches, narrow feet and hammertoes …
Had foot surgery 10 years ago.
I have read very positive reviews about Calmare or “ Scrambler” therapy. Painless, non invasive and drug free. Developed by 2 Johns Hopkins doctors- approved by FDA. 15 years - I am desperate to find relief. My pain in concentrated in my toes and ball of foot. That’s it -
A lot of doctors ( my neurologist for one) have never heard of this therapy-
I refuse to take gabapentin but will give Lyrica a try -
Google Calmare therapy to find more information-
I had been active most of my life ( marathon runner)Amateur Soccer player and aerobics.
Initially my career required a certain heel height and that combined with cabin pressure just made my feet worse.
It’s intermittent pain.
I am desperate for relief-

REPLY
2 replies
norelle27 | @norelle27 | May 6 10:15pm
In reply to @vtsnowbird "My feet burn with neuropathy. A nurse friend sent me (from Amazon) a bottle of frankincense..." + (show)
@vtsnowbird

My feet burn with neuropathy. A nurse friend sent me (from Amazon) a bottle of frankincense & myrrh. A very small amount rubbed into my feet actually soothes the burning pain. The bottle actually says Neuropathy on it. Use 2 or 3 times a day. Honestly helps

Jump to this post

I’ve used this before. It helped a little but I think my neuropathy is so far advanced that it’s like a temporary band aid.

REPLY
harley22 | @harley22 | May 6 11:55pm
In reply to @norelle27 "So I’m in the same boat - neuropathy in both feet, non-diabetic and continues to get..." + (show)
@norelle27

So I’m in the same boat - neuropathy in both feet, non-diabetic and continues to get worse.
I work on my feet and up to 8 hours. I have a terrible time finding shoes that fit( high arches, narrow feet and hammertoes …
Had foot surgery 10 years ago.
I have read very positive reviews about Calmare or “ Scrambler” therapy. Painless, non invasive and drug free. Developed by 2 Johns Hopkins doctors- approved by FDA. 15 years - I am desperate to find relief. My pain in concentrated in my toes and ball of foot. That’s it -
A lot of doctors ( my neurologist for one) have never heard of this therapy-
I refuse to take gabapentin but will give Lyrica a try -
Google Calmare therapy to find more information-
I had been active most of my life ( marathon runner)Amateur Soccer player and aerobics.
Initially my career required a certain heel height and that combined with cabin pressure just made my feet worse.
It’s intermittent pain.
I am desperate for relief-

Jump to this post

I a relate.
My feet hurt so bad on the sides,that I can’t walk sometimes
Shoes are difficult to find, have tried Orthofeet and even they hurt after awhile.
I use Salonpas pain patches and CBD ointment for relief.
It doesn’t help alot, but it’s better than nothing.
Hope you get some relief

REPLY
2 replies
kathyv66 | @kathyv66 | May 7 8:28am

I had success with relieving the pain thru about 6 months of accupuncture. I no longer have any pain - just the numbness. The numbness has improved a little by wearing barefoot shoes in the house (I have Leguano brand). They are very comfortable. My neuropathy was chemo induced.

REPLY
whalen1014 | @whalen1014 | May 7 8:42am
In reply to @doors4ever "I tried just about everything for my feet. The only thing that worked for me was..." + (show)
@doors4ever

I tried just about everything for my feet. The only thing that worked for me was a pair of open toe compression socks. After about a week my symptoms were gone.

Jump to this post

Hi, do you think you could give a brand name on compression socks? There are so many…
Thank you , Deb M

REPLY
2 replies
Mentor
John, Volunteer Mentor | @johnbishop | May 7 9:07am
In reply to @whalen1014 "Hi, do you think you could give a brand name on compression socks? There are so..." + (show)
@whalen1014

Hi, do you think you could give a brand name on compression socks? There are so many…
Thank you , Deb M

Jump to this post

Hi have lymphedema in my legs along with my neuropathy so need them to control the swelling. I've been buying TheraMagic Zipper Closed Toe compression socks for several years and like the quality and price but most of all that they are easy to put on and take off - https://www.amazon.com/TheraMagicTM-Compression-20-30mmHg-Graduated-Zippered/dp/B0CP3HJ2VP.

REPLY
doors4ever | @doors4ever | May 7 9:12am
In reply to @whalen1014 "Hi, do you think you could give a brand name on compression socks? There are so..." + (show)
@whalen1014

Hi, do you think you could give a brand name on compression socks? There are so many…
Thank you , Deb M

Jump to this post

Amazon-
Brand: LUAUTO3.7 4
Neuropathy Socks - Ankle Compression Sleeve for Foot - Stunor Dr.Neuropathy Socks - Neuropathy Plantar Fasciitis Achilles Ankle Socks - Neuropathy Socks for Men and Women

Color: Black

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To choose your size, reference your U.S. shoe size, and refer to the sizing chart in the images; wide range of neuropathy compression sock sizes are available to comfortably fit and soothe all teen to adult men and women foot sizes.
Neuropathy Socks --- Stunor neuropathy socks for women and man are suitable for acute and chronic injuries. The thermally active material of the support belt promotes blood circulation in the affected ankle, warm the ankle and relieve ankle pain.
Superior Comfort and Breathable --- Our comprex compression socks are filled with precious Nano scale Lycra that ensures long-lasting comfort and durability, and takes care of your tender feet.
Relieves Foot Pain --- Soothe socks promote blood flow to relieve swelling and provide energy for tired, aching feet and ankles. Which provides ultimate pain relief from a variety of ailments including plantar fasciitis, arthritis, sprains, swelling, tendonitis, muscle fatigue, and other ankle pain.
Relieve foot pressure --- Neuropathy compression socks provide soothing compression to your sore feet and ankles; toeless therapy socks effectively increase blood flow circulation and decrease painful swelling along the foot, providing pain relief to your feet.
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REPLY
norelle27 | @norelle27 | May 7 9:39am
In reply to @harley22 "I a relate. My feet hurt so bad on the sides,that I can’t walk sometimes Shoes..." + (show)
@harley22

I a relate.
My feet hurt so bad on the sides,that I can’t walk sometimes
Shoes are difficult to find, have tried Orthofeet and even they hurt after awhile.
I use Salonpas pain patches and CBD ointment for relief.
It doesn’t help alot, but it’s better than nothing.
Hope you get some relief

Jump to this post

I have Perscription Dermapad w/5% lidocaine- Also doc is calling in a topical gabapentin creme made a a compounding pharmacy- not covered by insurance.. will report back after I have used it ( not covered by insurance) 130.00!!! Yes, I’m desperate to relive pain at all costs🥲

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