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I have HHD, which was misdiagnosed for over 30 years as herpes, psoriasis, whatever. It was finally correctly diagnosed via biopsy of an active lesion. While creams and powders helped with breakouts, nothing lessened the frequency until I started low dose naltrexone. Very few doctors have experience with HHD, so I researched it (primarily on PubMed) and brought the LDN treatment research to my derm. He was unaware of this option so researched it himself and started me on 4.5mg daily. I have not had a serious episode since. I do use medicated power daily to keep the problem areas dry, and Betamethasone if I get a small breakout. Starting LDN was life changing as I am a very active 69 year old and there were times it was debilitating.
Replies to "I have HHD, which was misdiagnosed for over 30 years as herpes, psoriasis, whatever. It was..."
Hi, my dermatologist prescribed 1mg daily. And glycopirrolate to avoid sweating. I’m in a middle of a crisis and taking that for about two weeks, not sure if it is going to help. But thanks for mentioning. I’ll continue taking it.
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Good for you doing that research, @contek .. and to your doctor for listening! So glad that it has helped you.
I had to Google low dose naltrexone since I was not familiar with it. Seems like another family member should be on that for his problems … but that would belong in a different forum!