← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@karukgirl

Hello there @nccarlee, and a warm welcome to Mayo Connect. You've found a wonderful support group here in the Camzyos group. These people are so terrific in the way they share their own story in the hope that it helps others. You can learn a lot from them.
I like that you are stubborn!! That's a good thing (and bad thing too!). It has helped you push through and not quit. But do be careful and listen to your body as well.
Is your doctor educated in HCM and Camzyos? It is important that they are, and for you to learn as much as you can too. You need to be your own best advocate.
As a very active 86-year old, what are some of the things you do that you enjoy? It's probably a little too soon to notice a big improvement in everything HCM affects, but have you found even one thing is different? Better?

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Replies to "Hello there @nccarlee, and a warm welcome to Mayo Connect. You've found a wonderful support group..."

I am fortunate to live in Raleigh and have access to top notch medical services. My Cardiologist is highly qualified in HCM and has done his research including consulting Cardiologists involved in the Clinical Trials for Camzyos. I feel very comfortable with his recommendations.

You asked what I enjoy. I love being outdoors tending my garden and coaxing the birds to frequent my feeders. I am a prolific knitter and reader. But the thing I like most of all is facilitating workshops on topics such as "Practicing Resilience" and "The Things That Matter Most to me at the End of my Life." This is what truly gives me joy.