Dear @lcl44, I was diagnosed with HHD at 50 when I had blisters that were spreading and wouldn’t go away. As far as I am aware, no one else in my family has it. I say this to tell you that, I am not an expert by any means but I think it makes sense for both of you to be tested for HHD. It will at least point the dermatologists in the right direction in terms of treatment. Having said that, you know that it can be a long journey to find what works for the individual since different things work for different people. It’s been almost 2 years and we still haven’t found the right medication but I am hopeful. There are supplements that can help, diet, stress management as well as regular medications. I am glad that you all have each other for support. I am sending healing thoughts to all of you.