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Hailey-Hailey Disease

Skin Health | Last Active: Sep 3 7:58pm | Replies (169)

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@angelita1

Hi, I have the same symptoms. Now getting worse. I’m 54, and 20 years with this. My dad two sisters one brother, and two of their kids.
Painful and heartbreaking to see dermatologists do not have the treatment information. I have Kaiser in Los Angeles, but trying different options like a guinea pig. I follow their recommendations but nothing helps. Now my lessons are sticky and crusty when it dries.

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Replies to "Hi, I have the same symptoms. Now getting worse. I’m 54, and 20 years with this...."

Our daughter is about the same age as you, @angelita1.
She lives in Norway so medical systems and terms are different. Some of the things she has tried ..
1) my husband’s Betamethasone Valerate on the assumption she had Psoriasis as he does, and that helped.
2) she said when she was on the Whole 30 diet, it cleared completely … but I gather that is a difficult regime to maintain.
3) her latest flare was when she was visiting recently and forgot the medication she is on for the infected eczema,
and very likely overdid the sugar and alcohol consumption during family celebrations! Sugar and alcohol are to be avoided on Whole 30 so that indicates, to me at least, a dietary modification to be considered.