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Anyone else dealing with Demodex Mites? What helps?

Skin Health | Last Active: 6 days ago | Replies (160)

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@cmcg

Hi! Know that you are not alone! This is a very supportive and helpful group! And several of us are nurses! I am a year into my journey and my goal has shifted from elimination to control w minimal to no symptoms. I started w 2 rounds of oral ivermectin, 2 months of alternating topical metronidazole and ivermectin all of which helped but the problem persisted. I have also taken Xdemvy drops… I am on my third round. I have been the best w the following routine: daily shower and shampoo w Paul Mitchell Tea Tree oil shampoo, followed by his “leave in conditioner/body lotion”. He also makes a conditioner that I also use after a shampoo. I try to leave the shampoo and condition on for a couple of minutes. I cover my body w the leave in condition/body lotion. And what I have added for a couple of weeks now is I strengthened the TTO concentration in all the above Paul Mitchell products. I purchased 100% TTO at CVS and I now add 3 ml of the 100% to 10 oz bottles of the above three products. Until about 3 months ago, I was washing my bedding on hot settings every day and my clothing daily. I wash my bedding every 3-4 days now and have resumed my normal routine of washing clothing. Two weeks ago I added Vaseline to my nighttime routine. I apply it to my forehead, eyelids, eyelashes, face, and in my nose. While this is fairly intense, it has become my routine and I am better….. in control but far from eliminated! I too have found doctor visits frustrating. My dermatologist has prescribed what Inhave asked her too but is kind of doubtful. My PCP and allergist had never heard of Demodex. I provided them w literature and they are “following w interest”. My opthalmologist is the most responsive. My guess is that he sees it every day in his practice. I am sure you have read that most people (100% over age 70) have some Demodex. And then for some reason, there is us…. Struggling w the infestation version! The literature will say due to being immunocompromised but many of us aren’t! I hosted a zoom call last week and have another one scheduled. I will re-post it in case you are interested. And so know that there are two Demodex groups…. Put Demodex in the search feature if this site and it will bring up the other site. One is much larger than the other. Perhaps we can get Mayo to combine them as there is a wealth of information. Everyone’s story is a little different and people find different treatment regimens useful. I haven’t heard one person say they eliminated the Demodex. I encourage you to take it one day at a time. It was a couple of months ago when I realized I was no longer thinking about it 24/7! And I think you will find this community very helpful!

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Replies to "Hi! Know that you are not alone! This is a very supportive and helpful group! And..."

I don't think we can eliminate them entirely as they are super common. But keeping them to a level that doesn't cause problems is the goal. I have pernicious anemia with autoimmune gastritis as the suspected root cause (seen on upper GI scope a few years ago).