@caltex Really sorry to hear of your struggles with this! My history is a bit of a book but here goes.

I had surgery to open up my sinuses about 25 years ago, but for the past 3+ years now I've had chronic sinus infections that won't clear up. The usual symptoms of a sinus infection to begin with (sinus headache, discharge, stuffy head, etc.), but developed into a nasty discharge from my right sinus, complete opacification of my right maxillary sinus, an infection smell that would lighten slightly but always return with a vengeance, and no antibiotic could eradicate it. After 3+ years of antibiotics in sinus rinses, orally and eventually via a picc line when a culture was finally done and Pseu was discovered. Even then, the ENT #2 who sent the specimen in told me not to worry about the Pseu results and to just keep doing the sinus rinse he prescribed. Eventually I saw an ID doctor and she put me on the picc line with cefepime 3x/day for 4 weeks - but that didn't work either. ENT #3 took a look at the lab results and saw that in addition to the Pseu bacteria there was also a bacteria usually associated with dental infections. She told me to go see my dentist to rule out any issues there - I had an infection around the remnants of an old root canal, so had an Endodontist surgery to remove the infection and root remnant (he went into the bone above the tooth/crown and drilled out the infection, then did a bone graft and tissue regeneration). BUT I still have the infection and my ENT now wants to do a mega-antrostomy. She took another "sample" yesterday so I should have the results soon to know if it is still Pseu or something else. One of my concerns is that my right eye has been swollen underneath for several months now and I'm concerned the infection has spread/is affecting that area. The only scan my ENT has ordered for me is a CT of my sinuses, but I want some type of imaging that could help detect infection in the bone/tissues on the entire right side of my head/face. If there is such an animal.

I am hoping to get an appointment at Mayo in Jacksonville - I would like to have someone who can do a complete review and imaging - no more guessing and throwing different things at this to see if something works!

I don't know if my saga is of any help to you. I do wish you luck in finding the care you need to get healthy...I know it is out there - we just have to be persistent and our own advocate...no matter how exhausting! All the best - M