I do think there is more happening with some of us than the research or statistics show.

Looking at science, I can see that different groups of hematologists around the world have different views and thus different protocols.

Maybe the MGUS does NOT actually trigger much beyond the typical MM, Amyloidosis, Lymphoma, WM…

Yet, there are doctors around the world who do seem concerned about patients (not statistics) who seem to suffer more difficult infections, fatigue, neuropathy, as well as the fracture risk acknowledged by most.

Being “seen” and recognized for the debilitating issues that affect my life in dramatic ways is what I need from any physician.
If I have not been able to “fix” myself and I am unable to use my will or mind over matter to be healthier when I am doing all I know to do, I would appreciate some REAL help.

It’s very discouraging when we are left to suffer in pain, maybe it is treated but not quite managed well enough, and are told or hear insinuations that our insight is wrong because it doesn’t fit with the statistics available through the most predominant research.

Remembering to be brave and advocate for ourselves is always important.