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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "Hi, I am considered a "severe" HCOM patient as well. My cardiologist is really wanting me..."
I was very nervous to start a new drug, too. I have now been on Camzyos for 9 months. At this point, I am now hesitant to ever get off this new drug. It has made such a difference in the way my heart feels and I function. Just for background; I am a 61 year old teacher. It used to be difficult to actually read out loud to my students. I couldn't read entire long sentences, and now it is no problem. The main difference for me day to day is how my heart feels like its in a regular beating pattern. Feeling your heart race, skip beats, and flutter used to be my norm. Not true now. I did have a time when I felt a little unstable, and a Nurse Practitioner helped change my other meds for better results. He has been a valuable resource. I actually meet with him more than my cardiologist now. I mention this because it is super important to be in contact with the cardiologist if you don't feel well on the medicine.