← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@natalierb

Hi, I am considered a "severe" HCOM patient as well. My cardiologist is really wanting me to try this medicine too. Can you tell me how long you have been on it? Have you had any side effects? What symptoms did you have before the Camzyos? I am just very nervous to try something new.

Thank you for your help.

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Replies to "Hi, I am considered a "severe" HCOM patient as well. My cardiologist is really wanting me..."

I was very nervous to start a new drug, too. I have now been on Camzyos for 9 months. At this point, I am now hesitant to ever get off this new drug. It has made such a difference in the way my heart feels and I function. Just for background; I am a 61 year old teacher. It used to be difficult to actually read out loud to my students. I couldn't read entire long sentences, and now it is no problem. The main difference for me day to day is how my heart feels like its in a regular beating pattern. Feeling your heart race, skip beats, and flutter used to be my norm. Not true now. I did have a time when I felt a little unstable, and a Nurse Practitioner helped change my other meds for better results. He has been a valuable resource. I actually meet with him more than my cardiologist now. I mention this because it is super important to be in contact with the cardiologist if you don't feel well on the medicine.