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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Jun 15 7:51am | Replies (774)

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@sandy4053

Thank you, Patty. I was seeing a hematologist because of anemia issues. He sent me to a nephrologist because he didn't like the kidney function (been on pain meds for many years due to back issues). Nephrologist ran tons of bloodwork. When I met with him, he pointed out the monoclonal ism lambda rate (03 g/dl) which I don't understand. His first word was it's probably MM and chemo treatments. I just freaked. I see the hematologist/oncologist on Monday. I've been a mess since getting this information. I feel much better after reading your answer here. I just felt like I'd been given a death sentence. I'm frustrated with the nephrologist making such a jump, instead of letting me just get back with the hematologist/oncologist and talking about this. I so appreciate your information. I hope I get a good report on Monday when I go back. Right now, I'm scared.

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Replies to "Thank you, Patty. I was seeing a hematologist because of anemia issues. He sent me to..."

Yeah who knows? There’s a reason doctors need to stay in their lanes. I think plasma cell disorders can be complex with subtle differences and you gotta know what you’re talking about.
I had a compression fracture from snow skiing and went for an X-ray at a well known ortho clinic for confirmation. I had just gotten the MGUS diagnosis and I guess the doc saw my other records and came in with a print out on MM. He started in on a spiel about how treatable this is now, blah blah blah.
I was able to explain it’s been fully worked up and not MM. He seemed very relieved. 😅