← Return to M-Spike, High Kappa and Kappa/Lambda Ratio

Discussion

M-Spike, High Kappa and Kappa/Lambda Ratio

Blood Cancers & Disorders | Last Active: May 7 11:35am | Replies (78)

Comment receiving replies
@pmm

@kappaking I’m just checking in to see if your FISH results are in and you are satisfied with your game plan.
How are you feeling about things as they stand?

Jump to this post


Replies to "@kappaking I’m just checking in to see if your FISH results are in and you are..."

I appreciate you checking in on me.

No, the results of the FISH analysis and the cytogenetic analysis haven't come back yet, and I'm getting a little frustrated about it. I emailed New York Presbyterian hospital that's doing the analysis yesterday to inquire about it. They sent back a response, only saying that when the analysis is completed, the results will be available to me on the patient web portal.

I think my current hema-onco is pretty close on issuing a diagnosis, after which he'll advise me to be treated by a MM specialist that he recommended at the Mount Sinai Center of Excellence for Multiple Myeloma. My current hema-onco told me that he's been in consultation with this MM specialist regarding my case. I think my current hema-onco just wants to see an established trend in my labs before coming to a final diagnosis and also waiting for the cytogenetic and FISH results to determine my risk profile. While I think I understand the seeming delay in getting to a diagnosis, it's frustrating waiting for it. I'm going to be seeing my hema-onco on May 8th and will gently press him on why he hasn't issued a diagnosis yet.

I think I'm on the cusp of active MM, but not quite there yet. They're watching me closely. My current hema-onco and the MM specialist seem to want to hold off on treatment for as long as possible. I assume they want to hold off treatment because I'm feeling pretty great at the moment - I've never had any symptoms, and have no CRAB markers - and the labs don't quite point to active MM (yet). But, again, I'll be pressing him on the 8th on why he's not recommending treatment now, even if I'm smoldering, to try to prevent it from becoming active.

Once I receive the diagnosis, I fully intend to get a second opinion at Memorial Sloan Kettering. But Sloan Kettering doesn't even want to talk to me about a second opinion without first getting the diagnosis and labs from my current hema-onco.

I'm fairly confident that I'm in great hands, and WILL be in great hands in the future with the MM specialist at Mount Sinai. The waiting, though, is frustrating.