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Neuropathy pills: How to avoid scams?

Neuropathy | Last Active: 2 days ago | Replies (732)

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@bigjohnscho

I am new to this forum although I have been suffering with peripheral neuropathy for 2 years (none diabetic). Like most sufferers I have searched endlessly to find supplements that provide some relief and a possible cure. My search has proved how impossible this quest is and so expensive due to misleading adverts and down right scams.What would be really helpful if members posted their experiences with supplements they’ve tried , which were useless/helpful or obvious scams. I am sure there must be some helpful supplements out there and we would all benefit if these were posted on this forum.

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Replies to "I am new to this forum although I have been suffering with peripheral neuropathy for 2..."

I have toyed with this for a long time but I take a lot of other medication. Sometimes I am still really tempted. I am very interested to hear from you.

Tried as many as I had access to, blue laser , acupuncture, creams etc...none with any effect...
Started out on heavy doses of gabapentin,,,,had some success for a year or two...pain was at a
5 out of 10...about ten years ago the gabapentin was not working,,,so went on pregabalin and hydromorph.
I take 100mg of pregabalin at noon and 9pm, and 6mg of slow release hydromorph at 7am and 7pm.
This has reduced all symptoms from a ten to a workable 2....so for the past ten years or so I have managed
to live with the neuropathy, knowing there is no cure,,,,just an attempt to manage this companion to the
best of our abilities.. Herbert C

You would be served well by searching through the history of pages upon pages of people's comments of things they've tried. Having been here for 3/4 of a year now, I have read many conversations about nerve medicines, supplements (do work IF you have a deficiency), marijuana, opioids, MFR (there's a section here on that), getting the right diagnosis as a start (getting the wrong one too!); about doctors, EXERCISE (or not!), and scams. It is an individual path, depending on age, condition, access to medical care, medication reaction, and specific health needs. Most of us plug away for years, on these things, as we age. All these things, and MORE have been posted. Since you are new you maybe haven't had the opportunity to check out the extensive history of "sharing" going on here!
I have uncovered one amazing miracle - for myself - I have Osteo Arthritis for 30 years, bad, turns out my PAIN was from GOUT! learned that through this group and a supplement! I had high uric acid and the doctors never paid attention because X-rays should be for OA. I found out by trying a supplement. But I transitioned to the medicine where my Uric acid levels were better addressed.
The process of aging is a slow burn - literally, metaphorically, and that's a pun! Gotta keep our heads up and support each other when we get stuck. Good luck!

Has anyone tried Nerve Freedom supplement. I couldn’t find out if it is a scam. It says it will cure PN but you have to keep taking it

Is Nerva Vivo safe, effective, a scam?

Once again, folks. There are no "miracle cure" supplements. Neuropathy cannot be cured...yet. It can only be managed, although I am still looking for something to manage it.

I had a problems with Cymbalta. It made me feel "too good" and then I had scarey mood swings and vertigo. Apparently it works for some but not for me.

Thanks for the heads up.. I'm going to try the TENS

Hi, I'm new on this forum. After 13+ years of struggling with PN, I'm still looking for the panacea. Drugs don't help. Night times are hell, especially as I live in a hot climate. However, a few months ago I was told to try wearing short compression socks ( open at the toes) for sleeping and guess what, they really do help.

I have severe foot neuropathy, I am not diabetic. I’ve seen a podiatrist, orthopedic, rheumatologist, neurology, and now go to a pain clinic every month. A fantastic medicine I am on is Xtampza. They have tweaked this medicine to take away the habit forming euphoria you find with other pain meds. This is critical for me as an electrical engineer to be able to function. The bad side now, it’s costing me over $600.00/month, and I’m now working with my doctor to find something less expensive. Someday, the patent will expire on Xtampza, I’ll be back if that happens. I have tried a product called Qutenza wrap, it advertises it will zap the n-pain for up to 4-months. It did nothing for me $1100.00 wasted.