Hi
I’ve recently been diagnosed with ET, I have never heard of it before my diagnosis and would love to chat with others who have it.

Last year in October I was have what I though was menopause symptoms. Fatigued all the time, itchy and then severely bruising from scratching, night sweats and weakness. I had bloods done and it came back with my platelets count of 690 and my white blood cells slightly raised as well.
I was referred to a haematologist who requested a full blood count and dna test. Unfortunately the haematologist is 2 hours away from where I live so I had phone appointments. All I got told on the appointment was I’m limited to what I can say over the phone, your bloods not normal, you need to have a CT scan which you can get the referral from Your GP. Had the CT scan all was clear of cancer. I had been in meantime really bad fatigued, multiple times being so weak and tired I couldn’t do anything but sleep, twice I had to go home from work because of it. I tried getting an earlier appointment booked with the haematologist, was told they would get back to me and never did ! Day before my scheduled appointment it was cancelled and I was told your next one will be sent to you . Needless to say I was livid !
Finally had an appointment sent out and it was a different haematologist. He was brilliant straight to the point explained things well and sent me out some information. So here I am finally diagnosed and taking Hydrea 3x a week.