Cochlear Implants

Ah-ha-ha-ha-ha! How funny! I started to watch the Q&A and am still laughing! Rolling on the floor laughing, really. There is no way to get captioning/subtitles. It's hilarious to me that here we are talking about cochlear implants, most of the audience being profoundly deaf or having profound difficulties understanding speech and these experts are talking way fast, not facing the camera and no subtitles. The irony tickled my funny bone.

Hi @lizzy102, I'm just catching up with your message now. I'm shocked that closed captioning is not included in this Mayo Clinic Radio episode. it is dated from 2017, which may predate the closed captioning option on YouTube. Here is another video with Dr. Matthew Carlson, ENT surgeon at Mayo Clinic, talking about Cochlear Implants. This version INCLUDES closed captioning.

Both are great companies. For me next year, it will be advanced biotics- better for music

I am in the process of having an implant. I have tubes now so they will take those out. Will be October before the implant. I have to wait a minimum of 6-8 weeks after the tubes are out.

I have an appt to see which implant i want. Cochlear or advance biotics. Also the over the ear or just the one piece thst goes where the magnet is.

I would welcome input and pros and cons on this

Thank you

Hi @angus, you may have noticed that I moved your message asking about the pros and cons of Cochlear Implants to this existing discussion. Simply click VIEW & REPLY to read through past posts.

Since posting your questions, have you had any additional thoughts regarding your choices of Cochlear, advanced bionics, over the ear etc.?

Hi everyone! I lost my hearing completely in July of 2017. I had been diagnosed 8 years before with Meniere's and had lost about 70% of the hearing in my right ear but my left ear was always fine. Well, in July of 2017 within a span of about 7 hours, they both went out. No hearing. Deaf. And what a blow to myself and my family. I had just turned 50 and didn't expect this at all. After verifying that my nerves were ok, I was approved for a cochlear implant (Med-el) and had the surgery in November of 2017. It was then activated in January 2018. For me, it has been a HUGE BLESSING. But it is not perfect. When I talk to someone one-on-one, everything is great. My speech comprehension is over 90% and I do quite well. But throw any variables in there (background noise, road noise in the car, restaurant setting, wind noise when outside, etc.) and it becomes more difficult to understand people. Without my implant, i would be profoundly deaf and would have had to learn ASL. Also, a cochlear implant does not take tinnitus away. I have terrible tinnitus in both ears. When I'm wearing the implant, it lessens the tinnitus significantly because my implant is picking up speech, noise, etc. But as soon as I take it off (to sleep at night, when I want a break, etc.), the tinnitus comes roaring back. At least that is what happens for me. I DON'T KNOW if that's typical. I know another woman who has two implants and NO tinnitus. So I'm not sure what the difference is. It has taken me quite some time to come to grips with this change in my life. When it first happened I just soldiered on. But I've had more feelings of sadness a year later when I realize what a profound loss it is. Good luck @angus on whatever you choose. -- Stu

I have profound hearing loss in my left ear and I wear a BiCros that sends the sound from my left side to my right ear. I was also told to only repeat the words that you understand. I found doing that very stressful although my word recognition dropped from my last audiogram. I find it difficult because I am so familiar with the words that I am asked to repeat. In my actual daily surroundings and hearing experiences I find that my word recognition is a lot lower than in the controlled Hearing booth. I am not a candidate yet for a CI because I have Medicare. All I want to do is to be able to hear!!! I can’t even say that sentence without crying its so upsetting.

Hi Judymays. Medicaid is 5 points less than Medicare - see if you can dual eligibility - I will have that next month.
I am a candidate but music is more important than interacting than Muggles- that’s me —- and I also am an retired animal care- dogs/ cats - we “hear”each other well.
You can go back to your audiologist as much you need to make everything is right.

I'm very happy that your CI has been so successful. I just joined Mayo Connect today.....want to learn more about my options to treat my hearing loss which happened suddenly 3 years age. At the point now where hearing aids do not help much but my docs have told me that hearing aids have to be completely useless before I qualify for a CI. Were you also told this? Profound hearing loss and also major balance problems have been a real life changer for me and I miss my old life so much. Thanks for listening. Judy

Be sure to get tested at a cochlear implant center in your area. I know several people who were told they did not qualify for a cochlear implant by their audiologists and/or ENTs. I also encourage you to use the telecoils on your hearing aids with assistive technology. A lot of people give up on their hearing aids because they are inundated with noise they find difficult to deal with. Hearing Assistive Devices can be very helpful in noisy settings like restaurants, church coffee hour, bars, sports events, etc. I believe that the tests for speech discrimination are a key factor in determining candidacy for CIs. So if you're doing OK in the testing booth, you may not qualify. Of course that environment isn't 'real life' if you are a social person who enjoys people. That's where the ALDs may be helpful to you. I use both a CI and a HA, which is called 'bimodal'. Both technologies were working well together. However, prior to having the CI and the time it took for my brain to adjust, I was doing poorly with the HA. The brain's ability to relearn to hear is amazing. Good luck to you.