Starting Bendamustine and Rituxin for Follicular Lymphoma

Posted by valandsheri @valandsheri, Jan 16, 2023

Hi - My husband has been diagnosed with Follicular Lymphoma and he will be starting treatment soon. He and his doctor have both agreed this is the best route for him. He is wondering how others have done with this treatment regarding side effects and quality of life during and after treatment. He is 75 years and in very good shape. He has a really good attitude too - I'm the one who is kind of panicking. He completed proton radiation therapy for prostate cancer almost 4 years ago and did quite well with it - but we're thinking this will be a different beast altogether. Any words of wisdom will be greatly appreciated. Thank you!

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valandsheri | @valandsheri | Feb 13, 2023

Dear Quimbie,

Thank you so much. I appreciate you sharing your experience and I will pass it along to him. I know he will appreciate it as well. When people like you that have been through it your words and experience mean so much to those of us traveling that road now. It helps us keep that good attitude that is so important. Thank you for your prayers. Always positive❤️🌻

mysharona | @mysharona | Apr 23 1:55pm

After 3 months with this combo, it was determined I was having allergic response to bendemustine.
I'm so much better without it but continue on ritual, no apparent side effects

mysharona | @mysharona | Apr 23 2:05pm

In reply to @mysharona "After 3 months with this combo, it was determined I was having allergic response to bendemustine...." + (show)

Whoops that darn autocorrect changed my comment... yes I'm on a ritual but also it was to say rituxmaub and doing 👍

Lori, Volunteer Mentor | @loribmt | Apr 24 6:52am

In reply to @mysharona "After 3 months with this combo, it was determined I was having allergic response to bendemustine...." + (show)

Welcome to Connect, @mysharona. I have to admit that now I’ll have 🎶My Sharona🎶 going through my head for the day! 😅
Thank you for sharing your experience with Bendamustine and Rituximab. They have a pretty good track record for helping keep some of our blood conditions under control but sometimes people have reactions. Sounds like that’s what happened to you with the bendamustine. I’m happy to hear you’re feeling better now that it’s been removed from the treatment plan. Were you also diagnosed with follicular lymphoma or is this for another blood condition?

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