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Waldenström's Macroglobulinemia
Blood Cancers & Disorders | Last Active: Apr 23 10:15am | Replies (132)Comment receiving replies
Hi @lorkish, Welcome to Connect! Thank you for sharing your experience of finally getting diagnosed with WM. Diagnosing blood disorders can sometimes be challenging but your hematologist pretty much missed the mark! I read in another comment you posted about the high dosage of Eliquis this doctor had prescribed. You sure made the right move with changing hematologists. It sounds like you’re on a better treatment path now and have a doctor you can trust to help you make the right decisions going forward.
With your blood work every three months are there specific markers your doctor is looking for?
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The levels of IgG at 326, IgA at 30 are low while IgM is high at 1550. I have MYD88 gene mutation. I have 1.2g/dL IgM-kappa paraprotein. I believe this is associated with higher risk of disease progression. So I am being monitored. I also had whole body scan which did not result in any tumors anywhere. This scan will be repeated annually now. Thanks to Mayo clinic cancer center I am now confident I will get proper care. Thank you