I was officially diagnosed with MGUS quite by accident after having bloodwork done to help explain frequency of sinusitus in February 2023. I then had a bone marrow biopsy which was most unpleasant. The hematologist that saw me did not gather all the pathology reports and slides initially to confirm diagnosis of WM. I decided to change to a new hematologist/oncologist who then put it all together, analzed the results and informed me that it is indeed WM. I now have my bloodwork checked every three months and see an expert blood cancer doctor familiar with WM. I am asymptomatic. It is so strange to have a condition that most people (like me initially) have never even heard of. I am so grateful this disease is slow growing and that I may not experience any symtoms for the remainder of my life.