RECOVER-VITAL Screening Visit Set

Our experiences are so similar. At least anger makes us feel alive, right? I think I’ve asked you this before, but did you find anything near you as far as clinical trials? The link is above; I can repost if you don’t see it. I have to drive 2.5 hours to Chapel Hill, but they pay you for a nice hotel and it’s LC centered medical attention. Sounds heavenly.

I looked into University studies last year. I had a doctor willing to refer me, but I only had a home test for Covid, and my antibody test came up negative, so I could not prove I’d had Covid.
Unless those requirements have changed, I don’t think I’m eligible.

I’ll be interested to see how it goes for you. Good luck.

Sending good thoughts your way❤️

Yes they did require the PCR test results to enroll me. They also required it for my referral to the UNC LC Clinic, which I have yet to see in person 🙄 but it’s how I got access to the study contact. I’m so sorry. I will keep you posted. Hopefully I don’t get the placebo 😡

I was positive I would have antibodies! This is such a strange virus. I know I had Covid. I had all the symptoms, though I was never sick enough to consider going to the hospital.

I would also have needed to travel for the studies, and right now everything is hard for me.
I’m about an hour from the UC San Diego study, and probably two hours from UCLA study. Our traffic is so terrible, that travel time could be much longer.

Oh gee, I hope you don’t get placebo too.

I know! I just happened to get PCR tested right after I developed projectile vomiting and a raging fever. Had I shown pneumonia on the chest X-ray, I would have been hospitalized. If you didn’t have pneumonia, no hospitalization; Key West had a teeny tiny hospital and they just sent you home. I hope you enter a phase soon where some of your symptoms decrease or maybe drop away for a bit.

Oh, thank you! I do need some indication that I will get through this. I don’t expect to get back to where I was, but some improvement would help me keep going.

I’m curious, was vomiting the last phase of Covid for you?
I had a three week siege.
Week one: Fever and aching all over...started to improve.
Week two: Head cold symptoms and loss of taste and smell....started to improve.
Week three: intense bout of vomiting for twelve hours...
Developed a rash on my back.
Started improving and thought I was over it and finally well.
Six weeks later clogged ears that would not clear, and cascading symptoms since then.
I now have very impaired hearing with tinnitus, and hyperacusis, cloudy vision, dizzy, weak and exhausted.
None of the various (many) therapies have made any difference for me.

My first symptom was fever, which quickly shot up to 103 and stayed there for 3 weeks. I had terrible muscle aches the entire time. The day after the fever started, I began vomiting and went straight to urgent care. Complete loss of taste and smell. Headaches.
After 3 weeks of misery, the fever started to come down and was gone in about a week. That’s when I started to get urinary pain and lots of white blood cells, blood, etc.
I sort of got better but I would have periods of relapse…then the depression, anxiety, panic attacks, more UTIs, multiple rashes (I’ve had had multiple biopsies), internal tremors, brain fog, stiff facial muscles, neuropathy, tics, shortness of breath, heart pounding, burning mouth, distorted taste/smell, dizziness, headaches, etc etc etc took hold full time. I have impaired hearing as well but I feel much of it from barotrauma from a scuba mishap. I have tinnitus. I’m in year four since I contracted Covid and there are things that have improved significantly unless I have a crash, which happens about every month, then everything comes back for a short period. What never goes away are the internal tremors, facial tics, pounding heart and brain fog. I have so little short term memory. I did develop both rosacea and allergies to lanolin and beeswax (finally, my dermatologist patch tested me for everything imaginable) so I don’t have rashes anymore, except my face flushes bright red at times.

I said the exact same thing! Just throw me a bone! I believe now that certain symptoms aren’t present every day as time goes on.