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DiscussionMGUS Symptoms: What symptoms did you experience?
Blood Cancers & Disorders | Last Active: May 15 3:30pm | Replies (72)Comment receiving replies
Replies to "Oh my goodness, Angie. You’re really going through a rough time right now. Whether MGUS has..."
I have not been rechecked for progression of MGUS they check it once a year. I have not spoken with my hematologist about this yet, but I have talked with my oncologist, and they recommended going to my primary care doctor. Unfortunately, my primary care doctor said that she doesn't have the ability to handle such a complicated case. she advised I go back to Mayo to get care. Mayo tells me to go to the ER.
The Carcinoid was removed and there is no further treatment other than monitor annually. No Chemo/radiation was needed.
I am sending a message to my hematologist today asking for a check for progression.