← Return to MGUS Symptoms: What symptoms did you experience?

Discussion
Comment receiving replies
@loribmt

Oh my goodness, Angie. You’re really going through a rough time right now. Whether MGUS has symptoms or not doesn’t change the fact that you are experiencing unpleasant symptoms and generally aren’t feeling well. Has your doctor checked for any progression of the MGUS?

You’re listening to your body which is telling you that something isn’t right. Have you discussed this further with your hematologist oncologist?

You did mention having Mono and unfortunately, those symptoms can linger for many months and potentially years. Since you recently went through serious cancer surgery/treatment that can leave you vulnerable to the virus. You might have to be your own advocate and push for further testing to find the cause of the continued symptoms. Can you tell me a little more about your carcinoid cancer treatment? Was this just surgery to remove a tumor or did you have chemo/radiation?

Since you’re really not feeling well have you been checked for ongoing Mono? How frequently do you have lab work done?

Jump to this post


Replies to "Oh my goodness, Angie. You’re really going through a rough time right now. Whether MGUS has..."

I have not been rechecked for progression of MGUS they check it once a year. I have not spoken with my hematologist about this yet, but I have talked with my oncologist, and they recommended going to my primary care doctor. Unfortunately, my primary care doctor said that she doesn't have the ability to handle such a complicated case. she advised I go back to Mayo to get care. Mayo tells me to go to the ER.
The Carcinoid was removed and there is no further treatment other than monitor annually. No Chemo/radiation was needed.
I am sending a message to my hematologist today asking for a check for progression.