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How fast do you start to feel hydroxyurea symptoms?

Blood Cancers & Disorders | Last Active: Jun 15 7:07am | Replies (61)
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@mags17

I have been taking Hydrea for PV for almost 2 years. I have had considerable hair loss for the last 8 mths or so. Bald patches on top and back of my head. Worse still is the rash which is driving me crazy, is mainly on my shoulders & tops of my arms, few patches on my chest & throughout my scalp. I tried moisturisers, to no avail. Did have rash for a couple of weeks last year but was so relieved they faded away. I'm tired all the time and struggle to do the basic housework. I will be 77 in June.

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Replies to "I have been taking Hydrea for PV for almost 2 years. I have had considerable hair..."
eileen11108 | @eileen11108 | Apr 19 7:23am

Hi Mags17,
Are you taking a heavy dose of Hydroxyurea? Have you seen a dermatologist about the rash? When I had 7 vaccines in less than a year I developed psoriasis on my legs and scalp. The legs cleared up with prescription cream but the scalp somewhat bothers me. I must admit I scratch it. My hair is a little thinner but I am on low dose. I am 80.
I have to say I do not remember anyone mentioning rash from Hydroxyurea.
Best wishes, Eileen

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memere09 | @memere09 | Apr 19 9:01am

I am 72 and have been taking hydrea for about 12 years. I have recently started taking an extra 500 mg 3 times a week and have noticed considerable hair thinning. I also need a 20 minute nap around 4 pm.
My platlet count is always very high. Even with the extra doses my counts are over 750. I have lots of energy still and try to have a positive outlook on this disease. I consider it a nuisance and that helps me with the mental acceptance
Janice

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