Pet Scan Results - Looking for layman answers.

Posted by lori7034 @lori7034, Apr 12 7:53pm

Received results from my PET scan today and a call from my doctor. I have tried to research the following with Dr. Google, but he isn't helping me. I am totally stressed about this and don't have an appointment until the middle of May. My anxiety and depression are spiraling out of control and I would just like some answers that I can understand and get me through to my appointment. How serious is the following diagnosis? Did I catch it early? I have been doing the annual CT scans for years and two nodules showed up, but never grew. They were the Lower Left Lobe and Right Upper Lobe. The lymph node had not been diagnosed before. I stopped smoking in Dec. 2023 and now they are growing (I'm sure it's a coincidence), but still.... any information would be greatly appreciated.

Lung nodules: 1.1 x 0.8 cm nodule in the superior segment of the left lower lobe is the recent CT and demonstrates mild metabolic activity with a max SUV of 2.1.

Adrenals: Low-density nodular thickening of the left adrenal gland most in keeping with an adenoma

Mediastinal: 1.1 cm short axis left paratracheal/AP window lymph node demonstrates significant hypermetabolism with a max SUV of 19.7.

IMPRESSION:
1.1 cm nodule in the superior segment of the left lower lobe demonstrates mild hypermetabolism suspicious for a primary lung malignancy. There is an enlarged markedly hypermetabolic left AP
window lymph node suspicious for nodal metastasis. No evidence of distant metastatic disease.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@flusshund

@mrnootz, I've been cancer-free 3 times since my original diagnosis. I use the exact same words, "and I was cancer-free!" every time I mention it in my lung cancer awareness / pre-screening presentation. I hope it's true for you. Are you still going to be tested/scanned? If so, how often?

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It's an organ cancer, so every 90 days for 2 years and 180 days for the next 3 years. I have also transferred my care to our local cancer center.

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@skm101

Can you tell me about your chemo and radiation treatments?

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1. Needle biopsy and staging. 3a Large tumor top left, small tumor lower left, two small somethings on the right side.
2. Needle Ablation to the large tumor, thereby killing 75% of the tumor.
3. Two (2) rounds of Chemo drugs: Paclitaxel and Carboplatin.
4. Two (2) rounds of Immunotherapy drug: Nivolumab
5. Surgery to remove the top left lobe and a bite out of the lower left lobe.
100% Cured, but...

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