Just diagnosed - endometrial endometrioid adenocarcinoma

Posted by tcy941 @tcy941, Apr 3 1:55pm

Just found out I have endometrial endometroid adnocarsinoma. Grade 2. Uterine wall is 4x thicker than it should be and it has gone to the connective tissue of the cervix but has not left the uterus. Any one else dealing with this type or have had this type? Thoughts etc would be greatly appreciated.

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@tcy941

Well that was overwhelming and terrifying. I am going to be praying for you. God is truly greater than all of this. Only he knows how long our time here will be. Hang in there.

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It's okay. God is good, and I appreciate your prayers. Hope what I shared was helpful and not too overwhelming. Be at peace 🙂

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@naturegirl5

@jcronin123 Thank you so very much for coming here and explaining all you have done to keep track of your records, meet with your providers, and keep organized. Your words are such great support for our members. How are you feeling today? Your surgery is coming up next week. I will share with you that my anxiety and worries started to go down once I had a treatment plan in place and was working diligently with my cancer care team at Mayo Clinic in Rochester.

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I am just hoping for a hysterectomy and then be done. Does that ever happen??????

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@tcy941

I am just hoping for a hysterectomy and then be done. Does that ever happen??????

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@tcy941 It does! Other members in our Support Group have reported just that with their months and years of follow-up and no other disease detected.

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@naturegirl5

@tcy941 It does! Other members in our Support Group have reported just that with their months and years of follow-up and no other disease detected.

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Oh thank you I needed to hear that. I haven’t even had my first oncologist appointment yet and I am a total mess. Will my boyfriend stand by me or not if my hair falls out? What if this and what if that? My thoughts are all over the place to the point when I think about it I am almost physically ill. I took care of my mom who died of cervical cancer and my sister who had leukemia so I know what they went through. I have no immediate family left.

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@naturegirl5

@jcronin123 Thank you so very much for coming here and explaining all you have done to keep track of your records, meet with your providers, and keep organized. Your words are such great support for our members. How are you feeling today? Your surgery is coming up next week. I will share with you that my anxiety and worries started to go down once I had a treatment plan in place and was working diligently with my cancer care team at Mayo Clinic in Rochester.

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Thank you for your comment. Yes, I feel much better now that surery is scheduled. Thank you for your kind words!

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@jcronin123

Thank you for your comment. Yes, I feel much better now that surery is scheduled. Thank you for your kind words!

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No thanks necessary. I will be in the same boat very soon. We may as well row through this journey together. God Bless you.

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Thank you for your advice. I did do a lot of what you suggested. Because of logistics , I had several of my testing sent to Mayo. I started at Mayo in Minnesota and continued at Mayo in Florida. They made the transition easy. I had the HIPEC surgery in Florida. I will start the binder you recommended on my next phases. I will post when my next tests are completed.

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From my perspective, once I was diagnosed, it was a relief. The fear occurred BEFORE the scan when I didn't know what was happening. I had told my doctor that I knew my symptoms sounded weird and I asked him to tell me if it's all in my head or if I should just go home and get used to feeling the effects of getting old. Once I knew that there was a reason behind the odd symptoms, it was obvious a plan could be established with how to move forward. I was diagnosed once in 2008, with ovarian cancer, and once in 2017, with endometrial endometrioid adenocarcinoma. From the time it was caught in both occurrences, I began a gratefulness journey that I was in good hands and had wonderful support from all directions. The episode in 2017 came about 6 months after the end of my 33 year marriage, so some of the symptoms had me suspect of only being stressed. The tribe of family and BFFs that had supported the journey through divorce transitioned into the most wonderful support system. I didn't need a lot of physical or care support, but it was nice when they would simply walk in the house, help themselves to wine and just "be there" while I recovered. Some people try to be too brave and not ask people to simply sit with them while they try to sort out in their mind what's happening to their body. Don't be afraid to ASK someone to just come over and watch a movie or explore an array of snacks while you do something "normal" together. It does so much to divert from worry or pain when someone else is in the room and you feel acknowledged; particularly when you are isolated at home during recovery. Don't let yourself be anxiety-ridden or frantically think of what-ifs. Give that to the universe or God or whatever you may believe in and let that entity carry the load so you can stay in-the-moment to heal. Wishing you all the best!

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@jane

From my perspective, once I was diagnosed, it was a relief. The fear occurred BEFORE the scan when I didn't know what was happening. I had told my doctor that I knew my symptoms sounded weird and I asked him to tell me if it's all in my head or if I should just go home and get used to feeling the effects of getting old. Once I knew that there was a reason behind the odd symptoms, it was obvious a plan could be established with how to move forward. I was diagnosed once in 2008, with ovarian cancer, and once in 2017, with endometrial endometrioid adenocarcinoma. From the time it was caught in both occurrences, I began a gratefulness journey that I was in good hands and had wonderful support from all directions. The episode in 2017 came about 6 months after the end of my 33 year marriage, so some of the symptoms had me suspect of only being stressed. The tribe of family and BFFs that had supported the journey through divorce transitioned into the most wonderful support system. I didn't need a lot of physical or care support, but it was nice when they would simply walk in the house, help themselves to wine and just "be there" while I recovered. Some people try to be too brave and not ask people to simply sit with them while they try to sort out in their mind what's happening to their body. Don't be afraid to ASK someone to just come over and watch a movie or explore an array of snacks while you do something "normal" together. It does so much to divert from worry or pain when someone else is in the room and you feel acknowledged; particularly when you are isolated at home during recovery. Don't let yourself be anxiety-ridden or frantically think of what-ifs. Give that to the universe or God or whatever you may believe in and let that entity carry the load so you can stay in-the-moment to heal. Wishing you all the best!

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God bless you for sharing

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New to this group. Was diagnosed in Feb. Was to have a hysterectomy on April 8. but after I was diagnosed my gallbladder acted up severely and I ended up having an emergency gallbladder removal. which I am in the recovering time for that and surgery now is May 20. There hasn't been any talk about what to do after the surgery. It is endometrial stage 1. Loved hearing all the support you all give each other. Thank you for this group.

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